Sorry I just need to get all this off my chest & this seems the ‘kindest’ place.
I take biologics for an inflammatory arthritis/vasculitis and for the past two years I’ve been really healthy (of sorts). Until Christmas. I’ve been on antibiotics for different infections 4 times since Christmas and also had covid with lingering symptoms since then. I feel like crap. I feel like I’ll never get better.
I have two kids, one of whom is autistic & low grade challenging with PDA (this is more debilitating than the autism) I’m doing a research postgrad which I’m loving and is my escape from the shit life throws but the communication is dire and that’s meaning I’m regularly having to choose between uni and dr appointments and the department are on my back if I choose doctors. Disability services are trying to mediate without much luck.
My OH is working night shifts for the foreseeable meaning I’ve got all the ferrying around to do for my autistic child’s social clubs which are imperative to her routine. 99% of the time this is fine except on a Friday when her club doesn’t end until 9.30 and my youngest will be well asleep by then. I can’t carry him upstairs so can’t let him sleep in the car, meaning she either misses it and has a massive meltdown or walks back herself. It’s really not far (under 5 mins) but a very dark unlit path through a park. She’s only just 13. My mother was coming to stay this weekend but won’t be arriving until Saturday so can’t help out and won’t come earlier as she has a night out on Friday.
On top of it all and the most mundane but upsetting part is one of my few friends messaged me asking me not to message them for a while as they were too busy to communicate with me for the next few months unless it was an emergency (I totally understand this as they have their phd hand in & viva due but I’m meant to be their proof reader which will be hard if I can’t communicate with them) So within an hour of this they were posting on social media pics of them at a hot tub holiday lodge with mutual pals and champagne.
It’s just one of those days. Feeling unwell, my kidneys are on fire and I’m just a wee bit lonely.
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Autoimmune disease
Just feeling sorry for myself
8 replies
Schlerp · 03/03/2022 18:30
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