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DM Front Cover: Scandal of Women's Health Care

(22 Posts)
RedToothBrush Wed 08-Jul-20 01:12:47

This is really refreshing to see on the front page of a newspaper.

www.dailymail.co.uk/news/article-8499945/A-generation-women-betrayed-Thousands-harmed-THREE-health-scandals.html
A generation of women betrayed: Thousands were harmed by THREE health scandals - mesh implants, pregnancy test drug and epilepsy treatment - which saw agonising symptoms dismissed as 'women's problems' by doctors, report reveals

The inquiry said lives were ‘catastrophically affected’ by mistakes made with three different products: pelvic mesh implants, a pregnancy test drug and an epilepsy treatment.

It criticised the NHS, private health firms and regulators for failing to listen to patients or spot the signs when things went drastically wrong

The story also makes the front page of the Telegraph, though not as lead.

The inquiry was overseen by Baroness Cumberlede who also oversaw the enquiry into Maternity Services which was damning too.

The Independent's excellent health correspondent Shaun Lintern covers the story here:
www.independent.co.uk/news/health/unsafe-medicines-patients-risk-healthcare-cumberlege-inquiry-a9605986.html?amp
Patients at risk from unsafe medicines and implants, major inquiry reveals
‘They are being exposed to a risk of harm when they do not need to be’

The title is frustrating as this is specifically a women's health issue.

The article states categorically
The inquiry said: “All that we have heard leads us to conclude the system is not safe enough for those taking medications in pregnancy or being treated using new devices and techniques. Patients are being exposed to a risk of harm when they do not need to be. And, while we have looked in detail at only three interventions, we have heard nothing that would lead us to believe that things are different for other surgical procedures and devices or other medications.”

It said the inquiry had exposed “systemic failings”, adding: “That the healthcare system itself failed to do so suggests that it has either lost sight of the interests of all those it was set up to serve or does not know how best to do this.

“The NHS is funded by the taxpayer for the benefit of all of society – current and future. Patients have been affected adversely by poor or indifferent care, have suffered at the hands of clinicians who do not, or who chose not to listen, and have been abandoned by a system that fails to recognise and then correct its mistakes at the earliest opportunity.

“At times patients have been denied their fundamental right to have the information they need to make fully informed choices. These patients should not have to campaign for years or even decades for their voices to be heard. Patients should not have to find the evidence to say whether the treatments they are being offered are safe and will leave them better off than before. They should not have to join the dots of patient safety. But when they do just that, they deserve to be listened to with respect.”

Now this is the bit where I hope you are all paying close attention:

The inquiry also found:

An institutional and professional resistance to changing practice even in the face of mounting safety concerns.

A culture of dismissive and arrogant attitudes by some clinicians that intimidate and confuse patients.

Complaints by women were dismissed as “normal” or “women’s problems” by male clinicians.

There is “gross under-reporting” of safety concerns related to medicines and medical devices.

Research funded by manufacturers “never sees the light of day” because it is negative or inconclusive while research on safety is “neither prioritised nor funded” by the NHS

Some doctors have conflicts of interest with financial and other links to companies, but there is no register. Companies don’t have to publish payments they make to doctors, hospitals or other organisations.

11 per cent of staff working for the Medicines and Healthcare products Regulatory Agency previously worked for the medical devices industry. The inquiry said the MHRA was left open to both “perceived and actual” influence by the industry.

Baroness Cumberlege said: “I have conducted many reviews and inquiries over the years, but I have never encountered anything like this; the intensity of suffering experienced by so many families, and the fact that they have endured it for decades. Much of this suffering was entirely avoidable, caused and compounded by failings in the health system itself.”

The inquiry has made wide-reaching recommendations to improve the system and ensure affected families receive support and that changes are made to prevent similar failings from happening again.

YEP except we know there is almost certainly another medical scandal in progress involving women and girls in particular, and it will come out in time. Exact same pattern on the face of it.

I think the report itself needs a good look onto it, and Baroness Cumberlege and Nadine Dorries need to get a few letters and emails.

(please feel free to forward this to Jolyon Maugham about why women might have slight issues with health professionals not always behaving ethically or in the interests of patients since we apparently should keep our mouths shut as HCP 'know best' after comments he made this week to tell him exactly where to stick it)

OP’s posts: |
RedToothBrush Wed 08-Jul-20 01:19:58

From two days ago:

Jolyon Maugham @jomaugham
Lord protect the vulnerable from the laity cherry picking evidence in support of a pet theory that the medical orthodoxy is engaged in a harmful conspiracy against public health.

Y'know? I think I'll leave assessing the best way to treat children to a body of medical experts. I think, after decades of training and experience, they probably know more about it than I do.

These tweets have not aged well.

OP’s posts: |
RedToothBrush Wed 08-Jul-20 01:25:10

www.immdsreview.org.uk/

This is the review itself but since its after 1am I shall leave til the morning to read.

OP’s posts: |
RedToothBrush Wed 08-Jul-20 01:28:56

Also from the guardian story (which makes the headline on the indy article even more galling) is this particular quote

www.theguardian.com/society/2020/jul/08/DENIAL-OF-WOMENS-CONCERNS-CONTRIBUTED-TO-MEDICAL-SCANDALS-SAYS-INQUIRY

It was notable that all three cases primarily affected women, she added. “As women, we know when things are not right with our bodies,” she said. “We are the first to know. When that information is ignored, it is simply belittling and adds to the suffering.”

OP’s posts: |
user12947626482 Wed 08-Jul-20 01:33:27

A culture of dismissive and arrogant attitudes by some clinicians that intimidate and confuse patients.

Yep, yep, won't change. The Supreme Court decision in the Montgomery(?) case about catastrophic failings in maternity care reflected the same and that was several years ago now. Doctor didn't explain the risks to the patient, didn't give her an opportunity to give informed consent, horrific outcome.

Doctor not remorseful, demanded that the law exempt her from negligence proceedings essentially on the grounds of "I am a doctor, I know best (but when it turns out I'm wrong that's not my fault), patients are too stupid to know what is good for them".

Supreme Court found in patient's favour, which is legally binding precedent. Not that you would know from how HCPs continue to behave.

user12947626482 Wed 08-Jul-20 01:38:15

JM should read the Montgomery decision. It basically quashes the "doctor knows best" / "body of medical experts" bullshit for good.

RedToothBrush Wed 08-Jul-20 01:38:49

en.m.wikipedia.org/wiki/Montgomery_v_Lanarkshire_Health_Board

OP’s posts: |
ShinyFootball Wed 08-Jul-20 02:04:22

Also springing to mind is the doctor who did all those dodgy breast cancer surgeries and the hosp where newborns and some mothers died unnecessarily.

I'm glad this is front page news.

Out of interest, just thought, have there been any recentish scandals like this about male healthcare?

ShinyFootball Wed 08-Jul-20 02:33:55

'Lord protect the vulnerable from the laity cherry picking evidence in support of a pet theory that the medical orthodoxy is engaged in a harmful conspiracy against public health.

Y'know? I think I'll leave assessing the best way to treat children to a body of medical experts. I think, after decades of training and experience, they probably know more about it than I do.'

Well he's a bloke. So what would he know about it.

Oh, and he doesn't like women. So what would he care about it.

CloudsCoveredTheSky Wed 08-Jul-20 02:51:56

When the DM is championing women you know the world has gone mad.

RedToothBrush Wed 08-Jul-20 08:06:55

Out of interest, just thought, have there been any recentish scandals like this about male healthcare?

North Staffs, abuse of elderly in care homes, abuse of children and adults with learning difficulties, BAME and deprived communities getting poorer healthcare due to outright prejudices by HCPs not just down to lifestyle choices, suicide and mental health in students and treatment of military as guinea pigs are scandals I can think of off the top of my head.

Military is the one which is male related.

OP’s posts: |
RedToothBrush Wed 08-Jul-20 08:10:23

CloudsCoveredTheSky

When the DM is championing women you know the world has gone mad.

Not really as it goes:

A survey in 2014 found the average age of its readers was 58, and it had the lowest demographic for 15- to 44-year-olds among the major British dailies. Uniquely for a British daily newspaper, it has a majority female readership, with women making up 52–55% of its readers

The Mail has an interest in reflecting its readership.

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RedToothBrush Wed 08-Jul-20 08:26:40

Going forward I can already see the move to online or telephone only services, which covid has accelerated, is particularly bad for women.

It lessens the chances of dv being picked up for one.

But more related to this story it prevents women being able to bring a friend or partner to the appointment to advocate or challenge a GP as easily.

Personally after the dismissive attitudes I've had, I won't see a GP without DH present because I don't trust them as far as I can through them and I don't feel I'm either assertive enough nor male enough to be taken seriously. It's not without reason.

So I'm concerned about more algorithms and untrained 111 staff being particularly detrimental to womens health because they are focused on male healthcare and programmed mainly by males as the default and further removes the ability of women to challenge the system and the attitudes of particularly (but not exclusively) male doctors.

I do think one of the reasons women go to the doctors more often is simply because they are not taken seriously on a first appointment so have to be more persistent as a result.

OP’s posts: |
SunsetBeetch Wed 08-Jul-20 08:34:53

RedToothBrush

From two days ago:

Jolyon Maugham @jomaugham
Lord protect the vulnerable from the laity cherry picking evidence in support of a pet theory that the medical orthodoxy is engaged in a harmful conspiracy against public health.

Y'know? I think I'll leave assessing the best way to treat children to a body of medical experts. I think, after decades of training and experience, they probably know more about it than I do.

These tweets have not aged well.

I took a screenshot in case it goes bye bye.

This entailed going through JM's twitter feed, which looks to be about 70% trabs stuff, including linking the religious right to GC feminists. The man's a buffoon.

RoyalCorgi Wed 08-Jul-20 08:40:35

These tweets have not aged well.

Ain't that the truth?

I think that any of us who have been engaged in the health system as women, or even just pays attention to what is going on, ffs, knows that the medical orthodoxy is often very badly wrong. What happened in the vaginal mesh case in particular (which is very recent) is absolutely gobsmackingly horrifying. I'm not exaggerating. A huge thank you to the excellent Kath Sansom who founded the Sling the Mesh campaign.

OneEpisode Wed 08-Jul-20 08:51:38

You attached a JKR screenshot?

SunsetBeetch Wed 08-Jul-20 08:58:29

Oops! Take two.

RedToothBrush Wed 08-Jul-20 08:58:40

Also see tweets by Benjamin Cohen of Pink News (as retweeted by JKR)

OP’s posts: |
ScrimpshawTheSecond Wed 08-Jul-20 09:04:49

That is a scandal, and as I read here yesterday - 'shocked, but not surprised'.

Misogyny is as endemic in healthcare as it ever was.

jcurve Wed 08-Jul-20 12:53:41

I have endometriosis and although I was diagnosed quickly, I’m absolutely shocked at the experiences of women on Facebook groups I belong to. Doctors who think it’s reasonable to leave women on strong painkillers & antidepressants rather than treat the cause. When it is treated by surgery, too often women are seen by a general gynae who has limited experience in identifying diseased tissue, resulting in these women being sent away with more antidepressants & no diagnosis.

Despite affecting 10% of women and around 50% of infertile women, there’s little research into its cause, with a 1922 theory still pervading as no other meaningful studies have been conducted.

OneEpisode Wed 08-Jul-20 13:06:29

jcurve I remember when the Caroline Criado-Perez book launched and she was on BBC Breakfast type shows. Viagra was one of her examples and they didn’t pursue it for period pain nor endo.
I had the conversational opening and tried to talk to men about the book.
They said “but some men are small” about the seatbelt data, and that endo wasn’t a big problem, aspirin were available... just didn’t get it.

jcurve Wed 08-Jul-20 13:48:08

oneepisode it makes me want to bang my head. I’m in a pretty male industry and observed that we’d set up a research group to identify big social & economic trends that could affect our industry - by appointing 10 men.

When I mentioned it they genuinely couldn’t understand my argument that men & women may have different experiences in life & thus big trends affecting women may not be obvious to an all male group. They only got it when I framed it that perhaps they wouldn’t notice trends affecting younger generations and suddenly yes, they accepted couldn’t speak for 22 year olds yet were previously fine to speak on behalf of women!

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