High CA-125 levels

(4 Posts)
HeartStrings Tue 25-Jun-19 18:34:54

Hi there,

I know this isn't somewhere to ask for medical advice but I am being seen to via gynaecologist tomorrow.

I just wondered if anyone has any experience with raised CA-125 levels. Mine are 56 so a little on the high side.

Symptoms
A few weeks ago over the last bank holiday weekend at the end of May I was in a lot of pain. It was a strong dull ache which was affecting my lower abdomen, neck, chest, shoulder and arms and down my legs. The pain wasn't in any place in particular but it kind of radiated round my body.
After speaking to NHS 111 they sent an ambulance because the pain was mainly on my legs side that day and they were worried incase something was wrong with my heart. All obs were ok so I didn't need to go in.

I then went to my GP who sent me for blood tests (a full MOT what I like to call it) the results showed the inflammatory marker was elevated and the enzymes or something from my liver were too. I was then sent for more bloods including a full liver screening. Liver was fine but it showed my CA-125 levels were high and I was told I could have a possible problem with my ovaries. I was referred urgently to a gynaecologist and my appointment is tomorrow morning.

I have been stupid and googled this and I'm terrified now. I'm 28 and all I'm worried about is if it could be something sinister.

Does anyone have any experience on this whether it was a good or a bad outcome?

OP’s posts: |
Starlight2004 Tue 25-Jun-19 19:28:28

I've not had it but I know it can be raised for a number of reasons including infection, endometriosis, ovarian cysts. I understanding you being worried though as I'm heading to the go for left sided abdo pain next week and I expect she will he testing for this. But as I said it can be raised for many reasons especially in someone your age.

Birdie6 Tue 25-Jun-19 19:34:05

56 isn't particularly high , and it can mean a variety of things so I wouldn't be too concerned at this point. I've had ovarian cancer and my Ca 125 was in the thousands at diagnosis. It's good that you're seeing a gynaecologist - they'll work out what is causing this. Good luck !

Hiphopopotamous Tue 25-Jun-19 19:55:33

At age 28 it's much more likely to be a cyst. I'm surprised they tested it at all in someone of your age with the symptoms you were having.
Ca125 is not a good screening test as it has poor sensitivity for cancer (ie false positives).
You'll get a scan and hopefully reassured that all is fine.
(Doctor)

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