Heres all the other bits around that -
I was discharged from gynae consultant last summer who said it wasn't relevant for me, dismissed ongoing pain on a 7/10 that had been going for 11 years by then (now 12 years), was absolutely horrible to me, told me he believed my problems were bowel related or psychological basically anything but gynae.
Given that I have been given an endo diagnosis on 3 separate occasions in the past by Drs who saw what my bleeding was like and the massive clotting and pain I am in, they had said in past possible adhesions.
However, those 3 diagnoses have each been taken back with a "don't know what it is", it's not deemed cancerous be thankful for that have a good day.
I've had 4 cysts burst in 12 years but apparently, I'm ok after antibiotics, the pain in the exact same area is relentless. They won't do a laparoscopy as it's not seen as suitable, I am a high-risk patient in relation to GA due to 6 conditions which limit me a lot (4 are neurological) and gynae literally CBA. I've been passed around like the proverbial hot potato.
The last referrals I saw them he saw me twice, agreed after a lot of persuasion to stop periods altogether as they were becoming more spaced out anyhow as in months apart.
So I was started on GnRH analogue monthly injections and HRT to take me into a chemical menopause as it might be the answer I wanted. I was reviewed 9 months later and reported back that it had helped over 75% but given time I hoped that it would get further into the system and break down whatever is causing pain.
Nope consultant decided to stop it there and then as it was a red herring and distracting from the fact my pain wasn't gynae (so why did the hormones help?), so he stopped the medication and discharged me against my wishes and in both visits to the clinic not once was my BP, pulse taken or anything else to get a baseline.
He referred to a pelvic CT scan from 15 months before as current when I questioned it, (I'm a wheelchair user) and when I asked a lot of questions at the 2nd appointment, he took the back of my wheelchair and wheeled me out into the waiting room down the hallway and left me. The tears were coming hot and heavy,
I think he knew I would try to come back in to get my answers if he went to the corridor. It wasn't a time thing, he had asked how did I find the meds, I said helped over 75% he said not good enough and was stopping and recommended asking to see psychology to deal with my "obsession" or bowel people if needed after that. Grrr. I was in less than 2-3 mins, I know cos an HCA was waiting for me to take me to discharge lounge as I was being discharged from medical wards that same day.
Psychology wise, I have seen psychology a number of times over the years and they agree I am trying to cope as best I can overall with the constant onslaught from all the main conditions.
As I have had severe mental ill health since I was a young teen, I have been referred for psych consults to discuss this as it has been seen as "attention seeking". It's not, My personal experience tells me everything is in doubt when a person has mental ill health.
So in end of April I saw the bowel consultant who has referred for tests which with approx waiting list times takes me up till Sept / Oct time and then clinic appointment to see him again for findings, we already know I have IBS mixed as a sub-condition of my main list, as often have incontinence that way too.
Psychiatrist is going to refer to do a referral for gynae and send to GP, psychology too, GP, as well as pain clinic, say they cant help and have rejected 5/6 referrals as I'm too complex for their team so the GP is coordinating this all to go out of area to fight for the best care for me.
Bowel Drs have enough apparently in their notes to point to adhesions but obviously cant see if I have endo first, I don't have diverticulitis thankfully but as a side effect of one of the neuro conditions I get a temporary version of gastroparesis so add to that wonky signals, periods which are all over the shop I never know if I'm coming or going.
I was in hospital in May and you know when the nurse is doing intake notes and asks about last period and I was like yeah that was October the day the cat spent in the vets and she was like that's 7 months ago, are you pregnant, sadly not. I was like it likes to take a break between and even with the hormones in between, it had been 1.5 years since period before. I was out of hospital 2 days when I had a week-long really heavy period where my original pain was worse than ever hence why I still say its gynae related. (its my body so what would i know)
It's a long slow process. I hope you get sorted asap and done end up going thru all these mills