Any lipedema sufferers here?

[AngryPancake]

I’m absolutely certain I have it. Can you tell me about your experiences and how it challenges you with weight loss?

[Foobydoo]

Sorry for being a few months late answering Angry Pancake.
I am certain I have this. I find it hard to lose weight and it doesn't come of my legs which are much larger then the rest of me. My upper arms are also ridiculously huge whereas my lower arms are just on the larger size of normal.
I am having extreme pain in my legs now, particularly at night and have been told it is arthritis but now im not so sure.