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IGA deficiency - help

(5 Posts)
OpheliasWeepingWillow Wed 13-Feb-13 21:29:34

My dd has a severe IGA deficiency, reflux and failure to thrive. She also has antibiotic resistant bacteria which makes her hard to treat for infections.

I am VERY pro vaccination / immunization. However, every time we have given her a vaccine she has reacted terribly (insomnia, not eating, fever, gastric issues... Horrible) which has set her back weeks or even months at a time.

She is also allergic to albumen BTW.

Anyway she now has a gastrostomy and is still very very thin. She is due vaccinations but what do I do? Am so conflicted. I truly believe that universal immunization is vital but... She needs to gain weight and thrive.

Anyone else had this issue?

CatherinaJTV Wed 13-Feb-13 21:32:50

oh, that is tough - how old your little one and which vaccines has she had?

OpheliasWeepingWillow Wed 13-Feb-13 22:03:07

She is 12 months and has had (not looked at notes but I think)


But we are on a different schedule from UK as we have been living in Asia.

CatherinaJTV Thu 14-Feb-13 09:55:57

Do you have her vaccination record? BCG she only needs once, polio and pertussis she would only need three over a year to have decent protection for 3 or 4 years. If you post what she had when, you can easily work out what she really needs (biologically) for protection and what can be delayed without too much risk. Also, if you tell me where you are, I can double check your country's schedule (PM me if you don't want this info openly online).

Finally - are you in the care of a specialist? You really should be with these issues and they should be able to advise you (much better than anyone online can) to find an adjusted schedule for your daughter.

More hugs!

narmada Fri 15-Feb-13 20:43:26

Hi ophelias , I posted on your other threads and have been wondering how you were both getting on.

Sorry to hear of the diagnosis but pleased you have one as it took some serious effort on your part sad

I have nothing to add on vaxing but where are you now? What do docs recommend and do you trust them?

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