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Restless leg programme

(43 Posts)
228agreenend Tue 04-Apr-17 22:13:24

Anyone watching?

I suffer, but not to the extreme of the people featured. I find I can be fine one minute,,but then something (red wine, chocolate) will set it off.

I hope this programme is not going to just show people,who suffer, but also,give treatments or mechanisms to control it.

KurriKurri Tue 04-Apr-17 22:19:29

I'm watching it in the hope it will give some suggestions to help. I have it and sometimes it is near unbearable - I haven't slept more than a couple of hours at night for weeks and weeks. Mine is getting worse - I have it during the day a lot now as well as through the night. So far the programme has made me quite sad - as I am seeing my life reflected.

Sparklingbrook Tue 04-Apr-17 22:21:43

I am recording it for my friend who suffers terribly with it.

KurriKurri Tue 04-Apr-17 22:22:18

I am slightly smiling at the irony of putting the programme on at a time of night when most people with RLS will be pretty bloody twitchy and uncomfortable

KurriKurri Tue 04-Apr-17 22:22:51

I think I should have recorded it Sparkling !

KurriKurri Tue 04-Apr-17 22:24:27

I am a bit like this lady - I have to do stuff to move my legs - so I garden and walk - but when I have to sit down for any reason it is awful.

KurriKurri Tue 04-Apr-17 22:25:49

I want to smack her husband.

Sparklingbrook Tue 04-Apr-17 22:27:13

Is there any medication that helps at all?

KurriKurri Tue 04-Apr-17 22:32:43

I have been prescribed ropinerol which is a drug used for parkinson's disease and also RLS - but it has some pretty awful side effects, and so far I have resisted taking it as I am afraid of the SE's. But I have it. I take strong pain killers and sleeping tablets - but they don't always work.
Really the only thing that works for me is constant movement, pacing around, rocking and bouncing.
I'm hoping this programme might suggest other treatments, stupidly it;s something I've always felt sort of embarrassed about.

ghostspirit Tue 04-Apr-17 22:34:45

What channel is it on?

KurriKurri Tue 04-Apr-17 22:36:49

Channel 5

ironwoman123 Tue 04-Apr-17 22:37:00

My mum suffers from this so badly it's such a shame and so annoying for her.

Apparently her new doctor said there was no such thing and it's all in the mind.

Will watch this tomorrow on catch up hopefully and tell her about it.

LadyB49 Tue 04-Apr-17 22:38:08

I've had it in arms and legs 24/7 for 30 years. Take medication.

Program seems to be about the effects of the disease on quality of life.
Yes, I'd love to slap that husband.
Actually, my husband has just said......give that bastard a digging.!!!!

228agreenend Tue 04-Apr-17 22:38:46

channel 5.

At the moment, it's featuring differing sufferers. It's good to have the condition highlighted, but it would be useful,to have treatments mention, maybe lifestyle or exercises you can do, if not medicine.

ghostspirit Tue 04-Apr-17 22:39:07

Thank you. I will have to watch 5+ 1 .

Does channel 5 have a next day repeat?

228agreenend Tue 04-Apr-17 22:42:37

Channel 5

So far, they have featured sufferers, but not treatments.

It would be useful to,have lifestyle changes to help prevent it, or exercises tot help treat it.

bigglesgoggles Tue 04-Apr-17 22:43:00

Jenny's husband is horrible.
So selfish and unsupportive....complaining because she crossed her feet to his side of the sofa and touched him.....really?!!!
RLS isn't causing problems in their relationship, his lack of understanding is.
She cannot help it, yet she feels she has to keep apologising for it.

I also have RLS, not as severe as those on this programme, but the almost cramp-like aches that force the need to move cannot be ignored.

(Currently waggling right leg side to side whilst left foot jiggling up and down! )

228agreenend Tue 04-Apr-17 22:43:33

Sorry, didn't realise my earlier post posted.

Aeroflotgirl Tue 04-Apr-17 22:45:48

Jenny's husband is awful, uncaring, unsupportive. Why on earth is she sitting with him, is tgere another place she can sit. I don't see that relationship lasting.

ghostspirit Tue 04-Apr-17 22:46:42

I get it when pregnant or very tired. Much worse in pregnancy though. People laughted at me when I said i had it. It's bloody horrible. I used to wrap my legs tight in blankets. Nothing really helpEd though

KurriKurri Tue 04-Apr-17 22:49:00

My doctor suggested relaxation classes - I lasted about five minute sitting in a reclining chair before I had to get up and go out because my legs were so sore - so that was a non starter !

QueenMortifauxcado Tue 04-Apr-17 22:54:15

Haven't watched it but dp has restless legs. Medication was very effective but some of the side effects were weird and he built a tolerance so had to switch a couple of times.

MiaowTheCat Wed 05-Apr-17 08:49:56

Think I'll find this to watch. Be kind to the partners of those affected though - it's bloody hell. DH has restless legs and also snores like buggery and when he's bad it's like trying to sleep next to a pneumatic drill doing Riverdance.

There are only so many hours you can take of being kicked in your sleep before you really do lose the plot sometimes!

KurriKurri Wed 05-Apr-17 10:25:55

It's good to hear the other side Miaow (I did grin at 'pneumatic drill doing riverdance')

I don't have a partner - so no worries about disturbing anyone - if I did I think I'd be pretty impossible to sleep next to so I sympathise with your predicament. (I have in the past had a snoring partner - and I know that is awful !)

I think it was just the partner of Jenny was so unsympathetic when she was in the throes of an attack - and it is so bloody painful and uncontrollable- you'd do anything to stop it if you could. But her husband did come good at the end of the programme, so I think they just filmed him when he was having a bad night too.

i think the programme is worth a watch - it does show what it is like to have RLS, - but it didn't offer any solutions or tips for coping, and I came away from it feeling rather depressed (so your partner might not want to watch it - it was all rather 'there's nothing to be done. it's awful' which I kind of knew anyway.)

QueenMortifauxcado Wed 05-Apr-17 12:39:17

Agree with Miaow, dp's mostly manifests as kicking in his sleep and tbh I was more affected than him most of the time as I was being kicked awake all night. The medication was really very effective though, I'm surprised more people aren't offered it? Ask your gp! The dosage is tiny and side effects only affected dp after several months on the same med.

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