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Are you the parent of a child or young person with ME/Chronic Fatigue Syndrome?

(2 Posts)
Dear6fc Thu 02-Nov-17 11:19:07

Hi

I am the mother of a 10 year old boy who suffers from ME/CFS, and have recently been working with the charity Action for ME to help them build the best possible service providing information and support to children and young people living with M.E./CFS.

We now need help from other parents of ME/CFS sufferers to understand what is needed, so that Action for ME can design a service that reduces isolation, increases knowledge and awareness, and ensures equality of care for children and young people and young people with M.E./CFS and their families.

We are inviting you to help us by completing a short survey, which can be found at:

www.surveymonkey.co.uk/r/7G2LXVX

Thank you in advance - your help will be invaluable!

Santawontbelong Thu 02-Nov-17 11:20:05

My ds 13 has ME. Just looking at the above now....

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