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anyone know anything about the psychological effects of Cystic Fibrosis

(13 Posts)
sallystrawberry Tue 29-Mar-05 00:00:26

Message withdrawn at poster's request.

sallystrawberry Tue 29-Mar-05 00:16:29

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sallystrawberry Tue 29-Mar-05 13:54:50

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hannahsaunt Tue 29-Mar-05 14:48:21

Sally, I don't imagine that there is a huge amount, even of anecdotal, stuff out there on psych stuff within CF. Have you tried contacting the CF Trust cfhomepage ? They probably have the most useful range of contacts esp within the health profession e.g. they may be able to put you in touch with a teaching hospital which has a history of science link with a university. Wellcome Trust also does history of science/medicine here Other than that, just use a bit of imagination! Drug therapies for CF are relatively new - in 1974 life expectancy was just 5 so infant mortality must have been common within living memory if you have any contact with anyone who may have had CF within their family.

sallystrawberry Tue 29-Mar-05 23:18:11

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sallystrawberry Wed 30-Mar-05 00:27:36

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sallystrawberry Wed 30-Mar-05 00:52:51

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colditzmum Wed 30-Mar-05 00:59:34

Oh boy, are you still up!?

sallystrawberry Wed 30-Mar-05 01:00:38

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colditzmum Wed 30-Mar-05 01:08:58

If it's about years ago, what about the "shame" of not being able to produce a "perfect" child?

Not that I know what I am talking about....

Keane Wed 30-Mar-05 07:56:38

well shame is one thing, plus there is both sides of the family arguing about who has 'caused' the CF

siblings who are 'normal' feel guilt that thewy are not the one with it

sallystrawberry Wed 30-Mar-05 22:48:18

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sallystrawberry Thu 31-Mar-05 23:40:45

Message withdrawn at poster's request.

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