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Joubert syndrome

(2 Posts)
JadeAndSienna Fri 19-Feb-16 18:06:25

My little 2 year old girl has recently been diagnosed with Joubert syndrome, does anyone else on here have children with the syndrome? Thanks in advance

CannotThinkOfOne Thu 31-Mar-16 21:29:38

A friend's son has it - she's not on Mumsnet but says the JS UK Facebook page is really good (it's closed group - you have to ask to join it I think)

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