Here some suggested organisations that offer expert advice on SN.

Son with Severe autism and learning disability turning 18

(11 Posts)
nikki12 Mon 23-May-16 14:53:16

My son will be 18 in a few weeks, he has severe autism (is non verbal ) and learning disability and needs constant supervision due to his behaviour and his pica.
I can't help feeling i should be happy he's and adult now something to normally be celebrated but its making me feel completely helpless and overwhelmingly sad, I feel like all hope of him getting better is gone. Not only do we have an uphill battle to get the help we need but there seems to be less obligation on the local authority etc to help. What can i do.

Rafflesway Thu 26-May-16 17:42:16

Message withdrawn at poster's request.

Citizensmith1 Mon 30-May-16 20:34:03

Hi Nikki and Rafflesway my son is nearly 17 and has asergers & global development delay but is verbal. Wanted to thank you Rafflesway for that information it's really helpful. Nikki I know how it feels to feel so sad - I look at photos on FB of kids at my son's school and they are starting to go out to pubs etc and become independent and I see the difference and my heart really does ache. I am lucky that I have supportive friends and family - I hope you do too.

Rafflesway Thu 02-Jun-16 14:16:26

Message withdrawn at poster's request.

Cabbagedcrust Wed 29-Jun-16 19:11:13

Wow this really hit a nerve with me! My son was 18 2 weeks ago, he has SLD and severe autism and it's been one hell of a journey. I felt so depressed about his birthday and was almost grieving for the things he should have been doing like going the pub, driving lessons etc instead we are watching re runs of the Teletubbies on an iPad all day! I found a card I had written him when he was a few weeks old which was to be opened on his 18th birthday. It bloody broke my heart. I'd imagined all these amazing things he'd be doing and was faced with a very different reality. Big hugs from me OP, it's a tough old painful world sometimes xxx

Rafflesway Sat 02-Jul-16 21:04:40

Message withdrawn at poster's request.

allwornout0 Thu 07-Jul-16 12:00:43

This is just the thread I've been looking for, my dd is 16 years old with severe autism and also loves teletubbies on the ipad.
I've just been having a panic about things like power of attorney which looks like is a no go as she doesn't have the understanding.
I am already her legal appointee with DWP from when she turned 16.
Rafflesway, hate to ask, but is there anything else that needs doing before she turns 18?

Rafflesway Thu 21-Jul-16 17:46:17

Message withdrawn at poster's request.

JudyCoolibar Tue 26-Jul-16 17:58:08

At least now that he qualifies for an EHCP (assuming he wants to stay in education) the LA has more obligations to help in that regard than used to be the case. Does he have one?

And have Adult Care done a full assessment of his care needs under the Care Act 2014 and produced a care plan?

JudyCoolibar Tue 26-Jul-16 17:59:54

At least things have improved with regard to education, assuming your son wants to stay in education, in that EHCPs are much better than the old Learning Difficulty Assessments. Does your son have one?

Also, have you had a care assessment via the Adult Social Care department, and have they drawn up a care plan?

Eliza22 Sun 25-Sep-16 21:10:45

Does your son have an EHCP? Does he have a Special Needs Support Worker? Who is advising you about future and adult prospects?

I am sending your a big hug. I've a 16 yr old who has asd and OCD. I look at him every day and despair and feel so, so sad for what might have been. He is very "aware". He's Aspergers. Has no friends. Is friendless and lives in an OCD world of self imposed isolation, spending up to 5 hours + doing his washing rituals.

Every day, we just carry on.

flowers xx

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