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Here are some suggested organisations that offer expert advice on SN.

ADHD and teens, medication etc

(9 Posts)
MaryChristmaZEverybody Tue 18-Dec-12 09:11:10

ds2 (at 14) has just been diagnosed with ADHD. It has been suggested that we consider medication, and he is keen on this. A couple of his friends have had their lives turned around by medication, and two of them are now off it (after a few years) and doing very well.

I just don't know enough about it, so thought I would ask for experience.

I'm not sure if this will be seen, so might start it in chat as well. Thanks.

Catsdontcare Tue 18-Dec-12 09:14:34

Hi I have no experience of medication for ADHD but just wanted to suggest you post in special needs children topic as it tends to get the most traffic and there are lots of knowledgable people over there smile

MaryChristmaZEverybody Tue 18-Dec-12 09:36:04

I will do that Cats, thanks.

I tried posting in Chat, but have been completely ignored there grin. Everyone must be Christmas shopping!

Hmmmokthen Tue 01-Jan-13 18:57:28

MaryZ - did you re post this? I am trying get get information with a very similar query and posted in special Needs Children I think! I am finding it difficult to follow things around this board! Did you get much response in chat?

We are seeing Paed tomorrow morning and I am feeling somewhat anxious.

Maryz Tue 01-Jan-13 19:39:39

Message withdrawn at poster's request.

louiseann50 Mon 14-Jan-13 17:16:28

Hi started my son on methylphenidate and we had to take him off it he was so aggressive

ToBeFair Tue 15-Jan-13 23:25:53

Maryz - I posted about our experience in your thread in Special Needs: Children, as it was a longer thread. DS1 has been taking methylphenidate for 3 years, from the age of 15, for ADD (inattentive type), rather than ADHD.

cankles Wed 16-Jan-13 19:03:52

Ds2 (12) has been on Equasym XL (hfa/adhd) it does the trick; the way we looked at it was - we felt we had to rule it in, to rule it out; I had tried fish oils and dietary changes and he wasn't responsive particularly to either but the equasym does really help him in school. We don't usually medicate at the weekend or holidays but will do if we feel he is particularly stressed or behaviours have deteriorated significantly and it has helped.

It is a difficult decision but one that we have found worthwhile x

salomawe Mon 11-Feb-13 14:57:16

My stepson was diagnosed at age 7 years and 6 months old with ADHD. After a year medicated with Concerta (Methylphenidate Hydrochloride) in April 2012 his mum could no longer cope with his behaviour and constant arguments, so she said she didn't want him living with her any more. The medication gave him motor tics, stomach ache, itchy skin, insomnia, lethargy, lack of appetite, high blood pressure, affected his short term memory and slowed his cognitive processing. He continued to make slow progress at school where the teacher told him she didn't have time to teach him and the only sessions he enjoyed at school were lunch time, play time and home time. He moved in with me and his dad and changed schools. I withdrew the drug completely within the first week, changed his diet to a more natural diet (high protein, vegetables, fruit, complex carbohydrates, no sugar or simple carbohydrates, only water or milk to drink), introduced discipline, routines, boundaries, exercise, constructive play, verbally teaching all tasks he needs to learn, regular bedtime 7:30pm 7 days a week. Out of bed 8:00am Monday to Friday, 8:30am Saturday and Sunday. After a follow up assessment at CAHMS November 2012, his blood pressure had gone back to normal, they were not familiar with the severe learning disability non verbal learning disorder, I had uncovered and suggested he no longer needed to be on their register as he did not now appear to have ADHD. Spending time understanding my stepson's needs, I uncovered a hidden severe learning disability. The disability is effectively invisible unless you know what you are looking for. He does enjoy going to school now but has difficulties with adaptive learning, creative writing, social cues, language interpretation (takes everything literally) and organising himself (slow adapting to a switch in learning environment, getting changed for P.E, packing bag at end of lessons, poor spacial awareness, low self awareness, poor and slow writing ability, poor comprehension, can't read between the lines, doesn't understand anything that has not been verbally taught, can't adapt previous learning to new situations, inability to think creatively. Having persisted with the Local Education Authority and not accepting their initial refusal to assess him for a Statement of Special Educational Needs; the assessment is now in progress and as part of that assessment CAHMS have provided on my request, a referral to a paediatrician to examine a neurological cause of his impaired learning progress and behaviour. Could your child be saved from the debilitating side effects that come with medication? It is definitely worth exploring a neurological cause and a process of managing the challenges with alternative intervention as described in this post because your child could also have an invisible learning disability.

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