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Round two,Trying to access an education for my Daughter with complex- special needs ?

(6 Posts)
angelsfly Mon 12-Mar-12 20:55:17

My daughter is 14 and has chronic regional pain syndrome in her hands ankles and legs making it impossible to weight bear at times, due to swelling and pain; and at times is unable to write.
She requires an enabler and a wheelchair to get her to school. All disciplinarians cannot agree who will supply this help. So she has been left uneducated isolated and housebound since last September.
Thank you to all whom have offered advice. However over the past two years, i have approached CAB for a solicitor no joy too complicated for them to sort out, contacted my local MP; The LEA; Social services, the Health Authority, GP, health visitor, ACE, charities, probably every person you can think of apart from going public and taking her story to a national paper.
We have a meeting at the school next Tuesday, with the head teacher; the school nurse; SENCO; her specialist (paediatrics); social services; her occupational therapist; and the educational welfare officer.
However i have been on the phone today to both the Occupational therapist, the SENCO, Social services and told my daughter will have a wheelchair in the next five weeks, so could they sort out an enabler. i told them she required a person to help her to get to and from school to help out at school with wheelchair assistance, doors; but also she required someone to write for her when her hands are in pain and swollen. And to collect work and go over it with her on the days she is unable to attend.
as soon as i asked for this help they all started to say it was not there responsibility to provide an enabler. One says its social care the other it’s educational; they continue to pass the buck.
I told them i was sick of them sitting on the fence of what is and is not legal; and if nothing is sorted out in the next meeting; i would be taking my daughter to school myself and stand outside with the press until they find someone to help my daughter get to school and get an education.
if anyone has any advice, which i can use at the meeting please advise me?

However on a positive note a very big thank you to the Boparan charitable trust whom gave us the extra funds we needed for a wheelchair. This means in five weeks time we will be able to get my daughter out of the house for the first time since last September. She is very happy and very grateful thank you!

Nigel1 Sun 18-Mar-12 21:30:00

Are you on income support? If so you can get free legal support.

angelsfly Tue 20-Mar-12 20:38:43

Hi Nigel1, No we are not on income support, We survive on my husbands war pension as he was injured whilst serving in the armed forces, He himself requires a high level of care as his injurys have left him disabled and living on morphine. He said he sees Dancing onions. grin smile

Nigel1 Sun 25-Mar-12 22:58:28

Ok I have emailed you off line

angelsfly Mon 26-Mar-12 10:59:51

Hi Nigel1, thankyou i will email you later today [smile)smile

Nigel1 Tue 27-Mar-12 13:37:38

have not got it?

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