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Considering HE my 5 year old ASD DS........Please help ??!!!!!!!!!!!!!!

(6 Posts)
ChunkyMonkeysMum Wed 21-Oct-09 16:41:52

Right, the long & short of it is this:

DS1 is 5.11. He has ASD. He is currently in a mainstream school but he is not coping, spends 95% of his time at a desk outside the classroom with a TA. He is statemented & currently gets 25 hours of support a week.

We had an emergency review meeting at the end of last term & it was agreed that we all feel MS is not right for him & that he needs a specialist provision.

It was put to panel last Friday & was suggested that he needs a placement in an ASD only school.

I spoke to his case worker at the SEN Dept of the LEA today who advised that he has had the decision back........

.......REFUSED!!

Basically, the reasoning behind it is that the panel feel that 7 weeks into a new term is not long enough to establish whether the strategies put into place within his current school are benefiting him or not. They want the school to give it at least a full term.

What they have failed to pick up on is that he has already been at this school a year & things have gone rapidly downhill in this time. He was integrated gradually into school (1 hour a day to start with, working up to full time by March this year - coincidently the same time he was statemented!! hmm.) Things have got worse since he started full-time. He has had 2 informal exclusions & now 2 formal fixed term exclusions in this time. The school have said that they are not equipped for his needs.

So, basically, I am now considering the possibility of HE him, but I have no idea where to start, or the costs involved etc. Is there any funding available for people who HE SN kids? What happens with his statement & the support given in that?

I will also post this in the HE section.

Any advice welcome. TIA.

sarahs95 Thu 22-Oct-09 17:44:31

Message withdrawn

ChunkyMonkeysMum Thu 22-Oct-09 21:50:41

Hi Sarah. Thanks so much for your post. We are going to appeal the decision made by the panel, but I will take your number down in case we have no luck & I do decide to HE. Thanks for the offer of helping me out.
I am in the South London/Surrey area.
Please do me a favour & request that MN remove your post so that your phone number doesn't fall into the wrong hands.
Thanks again.

(BTW, my name is not TIA, that means Thanks In Advance grin)

sarahs95 Fri 23-Oct-09 18:29:03

Hi there,

Hope all goes well with the appeal and that you get some great provision for your ds.

Please do feel free to call if you want to consider HE further

Best wishes
Sarah

PS How would I get a post removed anyway? Report myself?

LauraIngallsWilder Fri 23-Oct-09 18:34:16

Hi chunky - Ill post properly later

Sarah - cut and paste the bits you want from you post and re post that bit because you said all sorts of useful things - then click on the red ! and report your post
Always wise to be discrete about where you live and your real name etc on MN because all sorts of people lurk - plus as I discovered in real life yesterday the HE world is a small one- very easy to work out who people are

sarahs95 Fri 23-Oct-09 22:33:14

Thanks to Laura(!)'s advice I have reposted this removing identifying information.

Firstly to say, I feel for your situation and for your son. I expect you'll get more help in the HE section than here, but I happened across your email and I HE two children, one with SEN. Had to reply though I'm meant to be doing something else!

I have to say it was the best decision I ever made for my SEN daughter and she is a completely different child. She is so happy. It is hard work, but if your current situation means you are coping with unhappy child before and after school and when excluded plus the stress of feeling out of control of what is going on in school and worrying about him, then that hard work can be well worth it. Your son's self-esteem and confidence may increase drastically with home education if you have the patience and willingness to do it.

You need to weigh up whether you will have enough support if his special needs make large demands on you personally. Will you get a break? However, my experience of a less severe special need is that school made things worse. I cannot speak about your son's needs though.

You don't need to be a mega brain - you can obviously write decent English and the resources that are available now are fab and teach you how to teach. Your child then has the advantage of a relaxed environment, no pressure and 1 - 1 tuition from someone who loves him and understands him well - you will learn how he learns and help him to learn that way.

There are many different methods of home education, but you don't need to decide straight away - the best thing is to try some different approaches and see what works for your son. (Hopefully we will be able to keep Badman at bay on this one.) Your son is probably very stressed at the moment and may need a break anyway - he's very young! He probably needs a break and it won't do him any harm. Children learn much better when they're happy and relaxed!

You really need to talk to someone in person. I would suggest getting in touch a) with home educators local to you b) with home educators with ASD kids, if those are not available locally (though they probably are!) Would you be free to go along to one of their meetings to get to know how things work? There are quite a lot of parents of autistic spectrum kids home educating, since school is often so difficult for these kids.

My daughter doesn't have a statement so I am no expert on what happens with that. I think it can be slightly harder to withdraw a child with a statement, so I would advise you to get some expert advise (from a home educator who has done it) with that before you go ahead if you decide to. Don't expect the local authorities to necessarily be supportive or helpful with doing this, but if you go ahead, get connected with the HE community for support. We stick together!

You will not get any help with funding, you might get some special needs support if you're lucky I think (I am not expert on this.) However unless you live somewhere pretty remote, you are fairly sure to be welcomed and supported by the home ed community, which is a great network for sharing ideas and expertise, especially on SEN. There are a lot of free/cheap resources on the Internet, there is too much curriculum to choose from and often available secondhand.

Have you seen this website http://www.he-special.org.uk/articles/aspergersindex.php

Also this... http://www.sixhomeedinkent.co.uk/homeed.html (This is the blog of a home educating family with several ASD kids)

Best Wishes
Sarah

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