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Educational Psychologist service no longer makes diagnosis of dyslexia

(27 Posts)
KisstheTeapot14 Tue 18-Dec-18 09:10:57

They have said they just look at needs of child in relation to literacy and do not assess in order to diagnose.

Wondering why and also if it will have any impact on support or future EHCP application.

Have been asking for assessments from school for over a year and no-one has ever mentioned this before! Maybe it has changed recently in our LA. I know students higher up the educational stream get assessed and diagnosed. Seems bizarre to me, reason given is that there is no agreed definition.

Worth seeking a private diagnosis? Asking a paediatrician?

Am so cynical these days it makes me wonder, what do the LA have to gain by no diagnosis?!

lanbury Tue 18-Dec-18 11:02:39

My DS has profound dyslexia and had an EHCP. However the LA’s policy is not to use the word. His plan breaks it down into chunks such as processing, working memory etc etc. I asked why they don’t use the word dyslexia and they basically said because everybody is “dyslexic” and they can’t assess everyone. For an EHCP it’s all about severity not a label.

KisstheTeapot14 Tue 18-Dec-18 12:38:41

OK, thanks. I think he may have mild dyslexia - scores about 50% on online tests like Nessy one.

TBH I am mainly keen to find out why he is so delayed with literacy. No-one seems to have an answer, but perhaps the ed psychology report will shed some light on the processes he finds tricky.

lanbury Tue 18-Dec-18 21:30:23

If you can afford it then you might want to consider a private ed psych. We did and it was worth it’s weight in gold to be honest

KisstheTeapot14 Wed 19-Dec-18 09:00:08

Thanks - how much did it cost?

Didiplanthis Thu 20-Dec-18 20:15:04

We had a private ed psych appt and they looked at it in terms of specific learning difficulties too ie processing, working memory etc. 'Dyslexia' is too broad a term now as there are so many variants within it it's not particularly helpful.

KisstheTeapot14 Fri 21-Dec-18 09:26:19

Ok, thanks. Didn't challenge it as I tend to try and pick my battles these days. If wider Ed Psych service in our area has decided this is how they approach it, then I'm not going to reverse that. In any case, seems like they will identify his particular problems with reading - which is what we wanted. Funny that school never mentioned this is what would happen (in the year + I've been asking)

SaltPans Mon 24-Dec-18 08:19:32

DD2 was diagnosed with a “specific learning difficulty” and it was recommended she have extra time in exams. When she got to university, they would not give her extra time, as there was no name for the specific learning difficulty!

SaltPans Mon 24-Dec-18 08:21:03

PS - an education solicitor wrote a letter to the university. It cut no ice with them.

DeepanKrispanEven Mon 24-Dec-18 08:42:18

SaltPans, that's odd as Specific Learning Disability is generally accepted as an alternative name for dyslexia. I take it the solicitor referred to the university's duty to make reasonable adjustments for disability? If you have recent evidence supporting your daughter's need for extra time, the university is treading on very thin ice. Your daughter should contact the Students' Union and the Equality and Human Rights Commission for help.

lorisparkle Mon 24-Dec-18 08:57:56

In our area the LA doesn’t ‘recognise’ dyslexia at primary. The EP report was fantastic but never used the word ‘dyslexia’ until the resource recommendations! We paid for a private dyslexia assessment through a assessor recommended by PATOSS. This was well worth it, very detailed with lots of recommendations. At secondary level they have accepted the dyslexia diagnosis and offer support however I am not what will happen for exams.

SaltPans Mon 24-Dec-18 19:31:43

DeepanKrispanEven

I can't remember what the solicitor wrote, but its inconceivable that they didn't talk about reasonable adjustments, etc. I did contemplate the disability discrimination road, but there is more than one way to skin a cat!

DD got RSI; and the consultant recommended rest breaks and extra time in exams - and his report came out just before the exams!

sevensatsumas Thu 03-Jan-19 22:02:35

Message withdrawn at poster's request.

KisstheTeapot14 Wed 09-Jan-19 14:06:09

lorisparkle how much did you pay? If you don't mind me asking. Was it an ed psych? Did primary accept diagnosis?

I have been looking at Dyslexia Assoc assessors - is there a reason you went via PATOSS? Thanks

artichaut27 Tue 15-Jan-19 13:24:17

A private Educational Psychologist charges on average £450. You can find one in your local area via patoss.

My friend has a son with severe language disorder. The Ed Psych from school did a cheap assessment because schools have a very limited number of hours of Ed Psycb per year. When you manage to get a school Ed Psych it’s no guarantee that they will give you a good diagnosis.

If you can afford it go private as you will have a much better assessment.

KisstheTeapot14 Tue 15-Jan-19 16:12:22

Cheers Arti.

Hopefully if we did that school would accept it?

Talking to a lady who working in eye hosp in NHS last week, she said we are back in time 30 years ago in terms of getting diagnoses done in within public health/ed.

artichaut27 Tue 15-Jan-19 16:55:00

The school should accept it. Then see what intervention they are offering to put into place.

Does your DC struggle hearing when there is a noisy background?
I’m asking because if this is the case, you might want to check for Auditory Processing Disorder, which is often co-morbid with dyslexia.
That’s with the NHS.

Also any signs of dyspraxia? 50% of dyslexic children have dyspraxia so it’s always worth checking with an OT.

It’s almost easier to get assessments from the NHS than the school.

KisstheTeapot14 Wed 16-Jan-19 09:10:49

Thanks, will check with teacher. He has diagnosis of dyspraxia - that was the first thing to show if you like.

Going to ask about ADD inattentive with paed team, though have heard they are sometimes reluctant to tag on co-morbid diagnoses by saying its part of dyspraxia...

artichaut27 Wed 16-Jan-19 09:25:44

ah that makes sense.

I didn't manage to get an ADD assessment as my DS1 paediatrician said his inattention was secondary/co-morbid to his DCD.

The thing is I don't think adding the ADD diagnosis to our list would help at this stage. He's only 7 and I'm not sure what adjustments his school could realistically make.

I'm now waiting for OT for Sensory Processing Disorder, but that takes more than half a year, if one even manages to get access to the special team.

KisstheTeapot14 Wed 16-Jan-19 09:58:53

It's a battle isn't it? Ours is 9. 7 is on the young side for ADD, like you say it may be best to wait and see how things unfold.

What help does school give you at the moment?

We have a meeting on Thurs with ours - wish me luck! New head so hopeful things may take turn for better.

KisstheTeapot14 Wed 16-Jan-19 09:59:20

ADD diagnosis I mean. doh!

artichaut27 Wed 16-Jan-19 10:40:23

It is a battle, and I've learnt to be very self-reliant. I read a lot about all of this, and I try to craft creative ways of helping him out.

At school, he has handwriting intervention twice week, the instructions were given by OT. I don't how much of it they really do. He is supposed to sit in the first row because of his APD, but I know he doesn't. His school is very sympathetic to SEN, so I can't be more pushy than I am.

He has a lisp (due to dyspraxia) so he has a TA twice a week to do exercises. He also goes private once a month. Private SALT says what he does at school is pointless, he should be seen by a proper SALT, not a TA, as his lisp is really rare and difficult to treat.

The intervention falls back on me basically.

Are you meeting the SENCO?

Have you looked into specialist Dyslexia/Dyspraxia teacher, through the Patoss website?

KisstheTeapot14 Wed 16-Jan-19 13:53:14

Hi Art,

We have handwriting intervention too, a couple of times a week. I ask that everything be written in the contact book as last year questions were raised about whether he was getting the gross motor exercise time he was supposed to with the TA (TA belonged to another child with severe and complex needs and her parents raised hell about it with school). So now I get a breakdown of what he has done - handwriting often comes home for us to see. Its getting there very slowly.

We are just starting SALT assessment and I expect we will be expected to do the work on top of extra maths/literacy/exercises/eye exercises and bladder/ ADD extra stuff. Oh and reading up on dyslexia for help at home. Bloody exhausting and not enough time.

Sister in law of friend at work was a dyslexia teacher privately so am going to give her a call maybe once Ed psych report comes back.

KisstheTeapot14 Wed 16-Jan-19 13:54:03

SENCO is lovely but not that effective and new in role to boot.

artichaut27 Wed 16-Jan-19 17:50:53

It's a good strategy to have the intervention logged on a contact book.

It is very tiring for him and me. I'm receiving very little help that is not private. So I either have to pay for help or do it myself. But I always have the feeling that we're not doing enough. I need to sit down write a weekly routine of all the things that we have to cram in.

I've just received a letter from Virgin Care for Sensory Processing Disorder. I applied 3 months ago, we filed a questionnaire with the school. Now I need to record everyday a Sensory issue he's had and which one of their solution I used to manage it. I need to fill it for 12 weeks.

Then I might have access to workshop, and then and only if his need of subsequent I would maybe have access to the SPD OT.

I only want to see an OT for 30 minutes to an hour and have an assessment. Ain't gonna happen, then!

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