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Bio-meds/ nutrition/supplements advice for ASD

(12 Posts)
Susiejo77 Wed 05-Dec-18 10:40:44

So my son is yet to be diagnosed by we have just had our first paediatrician assessment, red flags for ASD. My main concern currently is his diet is horrendous, it started when he was 14months out, slowly he aliminanted pasta, rice, vegetables, anything what was slimy and not beige basically. He is coming up for two now and basically lives of bread and breaded chicken and fish - I can only manage to get a small amount of veg into him if its hidden in say cauliflower fritters. He used to eat everything, olives, humous, guacamole, pea fritters, all fruits. Now he will only eat dried fruits and bananas and apples, he will eat yoghurt, but doesn't like it with bits in it and will eat jelly.

I had started to do my own research and was giving him abidec advanced Multivitamin as it has Vitamin B6, B1 & 12 and omega 9 and 9. Then i was giving him a chewable omega 3, but i hadn't found anything that i could give him for iron and zinc which didn't have a load of other vitamins in? We have a NHS dietician for this now and she advised giving him Wellbaby as that has zinc and iron, but he refuses to take it. We were meant to have follow up appointments on the NHS every 3 months as his diet is so limited now, but our next appointment isn't for 5 months as they couldn't fit us in sad

After all this, I really feel i need some dedicated advice, I'm wondering if any mum's of ASD children has had these limited eating issues, what road should I go down and if there was any private specialists that could advice me on supplements, do full test of what he needs?

Has anyone been to see the: autism wellness centre London, I believe they do stool, urine and blood work to see what the body/brain needs?

Any advice or similar stories would be fab, I'm feeling lost

TribunalHelpPls Fri 07-Dec-18 16:21:09

What does he drink? DS1 stopped drinking anything but water when he turned 2, but as he likes chocolate I slowly managed to introduce hot choc drink in the evenings. I put the Wellbaby vitamin syrup in that.. is there any drinks you can put it in?

Apart from that we give pro-biotics which Holland and Barrett (or amazon) sell as chocolate balls. They are expensive but our NHS dietician was happy as she says it helps to keep him 'regular'.. something which can be a battle as he won't eat any fruit or veg sad

Susiejo77 Sat 08-Dec-18 10:22:11

Oh well baby syrup sounds good. DS will drink smoothies so I could put that in there than. Probiotic chocolate balls sound amazing! Thanks for the tip

Susiejo77 Sat 08-Dec-18 10:23:42

Is it this one:

woolster Sat 08-Dec-18 10:34:16

The revital websiire is good. When ASD son, now 8, was 2-3 he had a similar v. Limited diet. Gave him Eskimo oil in tutti frutti flavour from a spoon and he loved it- I thought we had good results for improved speech, but difficult to prove. Also get probiotics in powder form and add to yoghurt. However these are expensive and I
‘M not convinced of impact. Maybe use if you’re giving lots of antibiotics over the winter which we were at that age. As for diet, work out what he does have (eg raw veg? Crunchy roasted veg? Hidden veg in pasta bake sauce? And give that. We found 2 the worst age for food range. However we gradually improved range with lots of positive praise- even for allowing something on the plate. Good luck!

Susiejo77 Sat 08-Dec-18 10:51:33

Thanks Wooster, does your son eat a range of foods now? It’s so bloody hard right now, off course you get the judgement from everyone “well if he was hungry - he’d eat it”, he wouldn’t he bloody starve himself. He eats nothing at nursery all day. Wooster was it this one:

TribunalHelpPls Sat 08-Dec-18 11:51:04!)+Boots+Shopping+-+Category+-+Health+and+Pharmacy+-+Mobile--_-(GB:Whoop!)+Wellkid&gclid=EAIaIQobChMI3unvlJWQ3wIVzp3tCh1NBQBHEAQYAiABEgIqNPD_BwE&gclsrc=aw.ds

It's this one. It has iron in there, vitD etc.

Susiejo77 Sun 09-Dec-18 00:32:46

Many thanks TribunalHelpPls, he’s only two? Can I ask if you put your DS on the gluten free and casein free diet? My son was already allergic to dairy? Started the gluten free, but can’t say I’ve seen any change really

TribunalHelpPls Sun 09-Dec-18 07:58:05

blush sorry, I didn't realise the age. Then I'd use

I personally didn't do gluten free/casein free with my DS. He had no digestive issues/painful stomach/constipation, weight issues, even with his restricted diet. There weren't any symptoms that made me believe these things were/are an issue for him.

I have friends with twins who both have autism, and one of the boys is dairy/gluten intolerant. The boys both have other immune sensitivities too so it made sense for their mother to get them tested.

Susiejo77 Sun 09-Dec-18 08:53:43

Arh thanks for this!

So, my son had terrible reflux as a baby, we finally cut on cow milk protein and he got better, whenever we tried to reintroduce milk he’d be wriggling in pain and we’d get a green/black pooh. I never actually got a diagnosis of milk allergy, we did have a prick test but he passed, he never had eczema it was gastrointestinal show it never showed up on the prick test. Can I ask you what sort of tests your friend had done?

Many thanks for the vitamin info!

Also, did you ever get a occupational therapist to help? The dietician on the nhs can’t see us again until April. I have paperwork guideline about reintroducing food, but he just ignores anything suspect on his plate.

I realise there are a lot of worry’s with ASD besides diet, but this one is so stressful right now. Today we have family over for a roast and whilst I’ll try DS with a little bit, he will only eat the roast potatoes, then I’ll do a back up ofbreaded chicken and the looks I get from family is priceless - it’s lack of understanding that this isn’t just fussy eating.

TribunalHelpPls Sun 09-Dec-18 13:26:40

I'm jealous your little one eats the roast potatoes!! DS1 is 7 now, and will be eating pizza or chicken nuggets, probably with garlic bread, for his Christmas lunch... as he has done since he was 2 or 3. At least he sits with us at the table now.. He used to take one look at all the food and run off!!

I totally understand how stressed you feel about it, and the dairy allergy complicates things even more, but you can't let family/other people influence things. I remember the looks and feeling they were all judging me when DS was young, but now thankfully both my parents and ILs keep his favourite branded pizza and nuggets in the freezer for when he visits.

There was an OT with the dietician the first few times I visited, but it turned out I was doing all the right things, so she couldn't help really. Now I just see the dietician once every 6 months to go over his diet so they can ensure he is getting enough nutrients, etc.

I think the main things are to give the child what they are comfortable eating, and if they will accept foods they don't eat on their plate put a little bit of that too. You seem to be saying your DS accepts the food on his plate, but just ignores it? That's fine. Just keep putting it on.. no pressure to eat it.

In the past year DS has started eating breaded chicken nuggets, and a particular brand of fries.. He would never eat any potato product except crisps before.. It is slow progress, but it's a whole new meal!! So instead of alternating between 2 evening meals I now have 3 I can give him 😊

I'll ask my friend about the gluten tests and get back to you

openupmyeagereyes Sun 09-Dec-18 14:35:35

Susie my ds (almost 5, ASC), dropped most of the foods he was eating as he turned two. His diet has been incredibly limited since then and he’s dropped a few more things on the way but gained almost none. I used to worry massively about it but realised a few weeks ago that I don’t in the same way any more. Of course I would like him to eat better but he does eat and nothing we have tried has made any difference whatsoever so worrying is just wasted energy.

He has the Wellkid supplement (used to have Wellbaby) and a Boots omega 3 syrup which was the only one I could find that didn’t include other vitamins. We’ve seen a dietitian a few times and they analysed his diet and found the only thing he was low on was iodine but that’s been fixed by the switch to Wellkid from Wellbaby (though Wellkid has less vitamin c which is a worry as he will only eat fruit purée).

Your family will get used to it, just ignore any comments and do what you feel is the right thing for him.

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