It is now one month since my 2.6yr old son was assessed with asd. One month of crying, worrying, fighting and more worrying.
He receives one hour of speech therapy a week. His OT will not start for another 8 months.
In the last month, i bought myself a new faster computer so i could read up on autism quicker on the internet.That is all i have done for one month. I know more about speech and language training methods than my son's salt. SHe hasnt heard of half of what I have come up with! And apparently she is one of the best.
Anyway, even though I dont feel isolated (so many parents with autistic kids) I feel very frustrated at the fact that any help my son gets is really going to be down to me. Hundreds of phone calls leading no where!
My question to you parents of children with an asd diagnosis is this - do you have tips for weaving your way through the maze of intervention?? If my son could speak, I know he would be halfway there to vast improvement. I just dont know how i am going to get him more speech therapy. Do I write letters, do i make a stink? Does every mother write letters and make stinks? Are "they" sick of mothers who write letters and make a stink?
No point in pissing any one off in the "system" especially when I know i will need them in the future, but as it stands, my son isnt going to get any real help until he goes to play school and thats not till December and thats only for six months.
I am not a speech therapist. I have tried to interpret what all the speech therapy web site say but its hard to do in real life without any real training and experiential back up.
My son and all kids on the spectrum DESERVE all the help they can get and I wont be going cap in hand to anyone. But there has to be an easier way, isnt there? What are we supposed to do with our kids just watch them and hope for the best with very limited services???
Time for a new political party, the Autistic Brain Party or something. Autism just seems to be everywhere, they can't ignore it much longer!
Please or to access all these features
Please
or
to access all these features
Here are some suggested organisations that offer expert advice on special needs.
SN children
Expertise at using the "system" please regarding 2.6yr old son with ASD
16 replies
mamadadawahwah · 08/08/2005 13:45
OP posts:
Socci ·
08/08/2005 20:44
This reply has been deleted
Message withdrawn
Socci ·
08/08/2005 21:00
This reply has been deleted
Message withdrawn
Socci ·
08/08/2005 22:29
This reply has been deleted
Message withdrawn
Socci ·
08/08/2005 22:41
This reply has been deleted
Message withdrawn
Socci ·
08/08/2005 22:50
This reply has been deleted
Message withdrawn
Please create an account
To comment on this thread you need to create a Mumsnet account.