Thanks so much to those who recommended it. It was a really invaluable experience, not least of all being able to ask the paediatric neurologist all the questions that have been buiding up for so long and getting some entirely sensible answers.
Also, though I felt exhausted by and a bit daunted by the programme on the way home yesterday, I woke up today feeling inspired by it and we have already done a few things today that have worked well. I think I had run out of ideas before. It also made me realise the SALT provision we currently have really isn't good enough, and I am going to get some private help.
Felt upset seeing in black and white how far behind DS is, but it only reflected what I already knew and he came out as quite a bit further ahead in his comprehension than he is in his physical skills which reflected what I thought about it being a patchy rather than global delay.
Also, when I asked my current physio why DS was still not walking (although has been on the verge of doing so for a year) she said "he just hasn't learned how to yet" and I alway felt that was wrong - he does know how to, but just won't let go of my hand. Bibic confirmed what I thought and have been telling the professionals with no response - the doctor said he has weak joints (which run in my family - both my ankles are arthritic and I have no ligaments supporting my left one - had to have an op recently, my mum is double-jointed and my NT cousin had to walk with calipers and peidro boots until she was 3)and the physio said it is also his heightened sense of danger holding him back, and that is what we are going to be working on. Today, I propped him up with his back to the wall and he cried and grabbed at me, but when I did it again a bit later he let go of me, smiled and started to rub his back against the wall. And then he stood and held onto a hoop rather than my hands - all things he wouldn't have done before. So feeling really pleased (I'm probably going to jinx it now by saying something positive!)
Anyway, sorry for waffling but although I felt a bit down yesterday just at the reality of it all, I feel today that at least we can help DS achieve his potential.
Btw, Hitc if you are reading this - yes, we got quite a hefty sensory programme! But it does actually kind of make sense to me now, even though on the way down I was thinking "I hope they don't give us loads of sensory stuff".
Sorry for waffling on, but just wanted to let you know how grateful I am as I wouldn't have known about BIBIC if it wasn't for you mumsnetters. I really feel they saw my DS for who he is, rather than just another child with developmental delay, and i do think the programme is geared towards him. Thanks again.
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