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Here some suggested organisations that offer expert advice on SN.

paed thinks dd has ASD as well

(10 Posts)
sarah293 Wed 28-Oct-09 15:15:36

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lou031205 Wed 28-Oct-09 15:36:56

Riven, surely that's not right, though? If your DD has sensory/ASD issues, then strategies need to be used to minimise her distress. It might take a bit more detective work (like 'scream diaries' or something), but she is worth more than 'nothing we can do', surely. Can't OT etc help?

sarah293 Wed 28-Oct-09 15:42:08

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Marne Thu 29-Oct-09 17:10:09

Hi Riven, i read a lot of posts about your dd, when you talk about her screeming when being in a strange/different envirmoment it reminded me of my dd1(aspergers), she used to get very upset if we took her out or around people she didn't know.

I think its possible to help her with the sensory issues despite her other problems.

We can't get OT for the dd's (both on the spectrum) as they only seem to help children with mobility problems (they are no longer seeing ASD children in this area).

Do you use pictures to prepare her before taking her out. Would a picture book/diary work? We use these for dd2 before going on holiday/starting new school etc. It seems to have helped with the screaming and anxiety.

PheasantPlucker Thu 29-Oct-09 17:22:17

Riven, my dd was 'tested' for ASD. In the end the (very lovely) paed decided she did have ADHD, and although many of the behaviours she exhibits following her brain injury are similar/identical to a child on the autistic spectrum she was not diagnosed as having ASD. Am happy to chat further with you about this if it helps at all.

sarah293 Fri 30-Oct-09 08:52:49

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drlove8 Fri 30-Oct-09 13:04:05

Hi Riven , sad .... im sure there is something you can try to help your dd .. her screaming will be so distressing to both of you ...did you have sensory issues with your DS? perhaps things that worked to calm him would work for dd too ? smile .

sarah293 Fri 30-Oct-09 15:00:17

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BobbingForPeachys Fri 30-Oct-09 19:43:39

I know someone who specialises in dioagnosing ASD in people with SLD.

She'sover our way but does take out of area referrals if your paed would refer?

BobbingForPeachys Fri 30-Oct-09 19:53:18

Her name is U Sundari,she's a Psych and a very good one indeed. Her work with children is out of clinical interets rather than funded and I have heard very good reports from people with children with (for eg) GDD and other co-morbids that easily mask ASD.

OTOH much of what ASD is would be amsked by DD2's needs anyway- she simply couldn't manage a lot of the behaviours that have to be rpesent for a DX under either DSM or ICD to be given. So I am not certain you would ever get one, but obv. with your DS she is at increased risk and its a possibility.

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