Other thing that really helps (thanks to Riven for this one) is not Googling too much. I can be feeling perfectly fine but start looking things up and end up crying, I think sometimes you can know too much!!!
Can you get any respite care? We are being assessed for this, I doubt it will be very often but it will help.
Do you have a social worker? The community paediatrician could see I was having a hard time (understatement) so referred me to them for an assessment (I think you are in Scotland as well, it's called a Section 23 assessment) to see what support/respite can be provided.
Hey I do have support yeah,and a social worker. I get 4 hours a mnth respite, but the nurse said today she is gonna try get 2 hours a week instead of 2 hours a fortnight, Yeh I am in Scotland! Falkirk, where are u?
I TOTALLY agree with u on googling things, not a good idea, believe me I have sat and done this numerous times
What is wrong with yr dd, if u don't mind me asking that is....x