OK, well after a rather intense session with paed mulling over the options (they're all shite and he's not going to discuss VNS without the regional neurologist who we see Dec) we are adding vigabatrin as quartiary. So DD1 is now on valproate, topiramate, keppra (can't spell leviteracetam) and vigabatrin. :sigh:
Other than the sight thing (which we know about and is a complete fecker due to other sight problems DD1 has, what side-effects happen in practice? You know, the stuff that isn't on the leaflet because it's not serious enough to warrant legal action, but is what everyone actually gets in practice.
And any hints/tips from Vigabatrin users? First dose tonight and we already worked out to spread it W I D E on the yoghurt or it clumps alarmingly.
Please or to access all these features
Please
or
to access all these features
Here are some suggested organisations that offer expert advice on special needs.
SN children
Vigabatrin - hints and tips?
6 replies
r3dh3d · 16/10/2009 21:19
OP posts:
sarah293 ·
17/10/2009 08:35
This reply has been deleted
Message withdrawn
sarah293 ·
17/10/2009 08:37
This reply has been deleted
Message withdrawn
sarah293 ·
17/10/2009 16:28
This reply has been deleted
Message withdrawn
Please create an account
To comment on this thread you need to create a Mumsnet account.