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Here are some suggested organisations that offer expert advice on SN.

Do we need an ASD section? Are non ASD people feeling lost/left out, not heard?

(33 Posts)
StarlightMcKenzie Thu 15-Oct-09 21:43:43

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anonandlikeit Thu 15-Oct-09 21:48:44

There is definatley a large number on here with children with ASD, but the thing i love about this forum is that it is so all inclusive... there is no qualifying criterea to meet, unlike in rl grin

Also as you say there is such a huge overlap in conditions, strategies that help a child with ASD may be helpful to a child with completly different conditions & vica versa.

My vote would be to stay a mixed up bag of all sorts!!

Goblinchild Thu 15-Oct-09 22:09:05

I've got no idea whether other SN parents mind all the chat about ASD, but we are all fighting a lot of the same battles.
IEPs, Statements, inclusion, perceptions in the non-SN world...exhaustion, isolation and all the rest.
We are SENCOP-wielding harridans and sisters under the skin.
I'd vote to stay under one big umbrella, there are specialised ASD forums out there, along with other specific fora for people who want to be more exclusive.

donkeyderby Thu 15-Oct-09 22:29:53

It really is ASD-heavy on here, but I haven't enjoyed the splintering of topics like SN Teens, so I'd vote for keeping it under one topic. There are overlaps as anon says. Thanks for thinking about the non-ASD crowd though - it's appreciated!

TotalChaos Thu 15-Oct-09 22:37:24

agree with Donkey. best to keep it as one topic.

debs40 Thu 15-Oct-09 22:58:48

I agree on keeping it together but I do understand the point being made and can understand how the board can feel swamped with ASD issues sometimes. It can be really busy and so I can tend to go for posts I understand but it can mean others going through a tough time with less 'common' problems are not necessarily being supported as they could be.

Perhaps we should all try harder with those posts where people, whatever the problem, need support.

2shoescreepingthroughblood Thu 15-Oct-09 23:00:52

yes ASD does swamp the board.......
buit maybe that is because you need more help.
having seperate bits would be horrid.
I would end up all by myself

2shoescreepingthroughblood Thu 15-Oct-09 23:01:33

the teens topic, doesn't work as no one posts.

Phoenix4725 Fri 16-Oct-09 06:04:30

yep i rather it stayed as it was, lot of ds issues overlap seveal other condtions does not tick one box or another

Goblinchild Fri 16-Oct-09 07:23:36

It's a shame about the teens section.
I followed wetaaugust and vic to mumsnet and they both have teens. However they seem to have disappeared...we used to chat a lot.
Didn't stalk them honest, they asked me!

cory Fri 16-Oct-09 07:53:06

I don't mind a bit of swamping: I've learnt lots from the ASD threads. I'd rather we stuck together. A lot of problems we are going to have in common, like dealing with family and telling the school. Nice to think of us, but if I had to go in a topic all on my own, I'd be really lonely.

busybeingmum Fri 16-Oct-09 07:59:31

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improvingslowly Fri 16-Oct-09 08:16:12

Maybe ASD heavy because there are so many people affected by ASD?

StarlightMcKenzie Fri 16-Oct-09 08:50:17

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magso Fri 16-Oct-09 09:28:39

My son has a complex set of sn including ASD - a not particularly unusual situation. The broad mix of threads on this board is particularly useful to me. Support groups are often narrower - especially asd support groups - I would need to attend 6 or 7 to cover ds broader needs. So the broadness of this board suits me and I suspect many others too.

Jo5677 Fri 16-Oct-09 09:46:33

I have one child with quad CP and extensive brain damage and i have another child with ASD and Dysraxia and i really enjoy the fact i don't have to go to different places to read relevant threads.
As everyone else has pretty much said i like that we are all in one place together :-)

2shoescreepingthroughblood Fri 16-Oct-09 10:06:58

tbh I hardly post about anything amjor now, If I do I get hardly any replies(I was once told that it was because people were to caught up on an asd thread!!)
I don't object to it, but I do feel left out in the cold.
That is why I thought the teens section would be good, but sadly very under used.
I do hate the rather selfish attitued though, people saying oh if people post in teens I will miss out......

electra Fri 16-Oct-09 10:16:43

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busybeingmum Fri 16-Oct-09 11:43:05

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Militanttendancy Fri 16-Oct-09 12:41:36

I agree, we should stay together, DD has "co-morbid" conditions, ASD, Attention Deficit, Dyspraxia/DCD, and MLD, but going through the "system" is a similar experience, regardless of the dx.

2shoescreepingthroughblood Fri 16-Oct-09 15:35:30

busybeingmum of course you didn't, I was just repeating an often said phrase.
tbh I have often wanted to lie and say dd has ASD, I can't help thinking I would have got more replies......
yes a lot of the stuff overlaps. but after being told, I got no replies due to no one knowing about phisios(that was another time) yet I was really talking about an ongoing behaviour problem, that anyone with a young person with sn could have helped with, I kind of gave up(yes years later the problem is still on going)

donkeyderby Fri 16-Oct-09 15:46:10

One thing that really stands out for me from reading so many ASD threads is how much better educated many ASD parents seem to be on all sorts of therapies and approaches and theories. It makes me feel that a whole other group of parents with children with different needs are just not getting the information they need. An example is ABA which I have been assured is just as useful for many non-ASD children but which just doesn't seem to be available unless a child has a diagnosis of ASD.

When I posted some time ago on this divide, I was flamed.

Jo5677 Fri 16-Oct-09 15:59:15

Thats quite sad to read,i had a child with a rare condition (born with an aneurism in the center of her brain which is in her case inoperable) and as a result has CP and is quadraplegic. 3 years later i had a son who was diagnosed with asd as a toddler but after 5 years or so of being in the 'system' by the time he'd come along i did feel very well educated as to what was available to my children,therapies etc,and found the same was available to my son as had been my daughter (even though dx was v different). He was offered less initially but i asked for and got more eventually.
Maybe that was due to the county we live in and proffessionals that were involved.
On here i have encountered a lot of people with asd children but in real life i have come accross a lot more children with CP than asd,must just be the circles i move in i know.
It's a shame some feel theres a divide (i'm not saying there isn't)i've just not come accross that yet myself. A thread i once posted about a core stability issue hardly got any replies but i didn't mind,i was just asking on the of chance,hasn't put me of posting about future questions smile

MrsMagnolia Fri 16-Oct-09 16:15:31

Message withdrawn at poster's request.

Jo5677 Fri 16-Oct-09 16:27:25

Hi,yeah thats true enough,also my son goes to mainstream school and is the only boy in his year with asd so i like to come on here and feel i'm not the only mother with a child with his condition.
I read most of the threads on here regardless of if they relate to asd or cp as i feel its good to hear what other people are experiencing or accsessing as like you said hopefully it will lead to my child getting as good a deal as poss and i think its no bad thing to be aware of a range of conditions as some of the issues they cause cause similar problems/concerns.

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