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off to the hospice

(21 Posts)
sarah293 Wed 14-Oct-09 19:34:56

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anonandlikeit Wed 14-Oct-09 19:43:56

take things to help you relax, anything you've wanted to read for a while?
There will be people in a similar situation to you & your dd, it depends what you want out of it.
If you want some time to yourself then you can have it.
If you want soemone to talk then you can do that to.. & i don't necessarily mean talk sn either, could be politics or the price of toothpaste - whatever floats your boat.
Go with an open mind, you may be pleasantly surprised.

meltedmarsbars Wed 14-Oct-09 20:20:22

Yep, take plenty of reading matter, even if it is just magazines. Our hospice offer head massage etc for parents.

Be prepared to watch what the other parents want on the parents common room telly!

I stayed the first time then realised that this is the opportunity my other kids need to have their mum to themselves. So now I take her and leave her and spend the time with the other kids and dh.

sarah293 Wed 14-Oct-09 20:23:07

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jardy Wed 14-Oct-09 20:26:10

Hi Riven
Hope you have a lovely break.Why not try asking Tia on Behind the Child or even just looking at her blog as she has been regularly.
Take care xx

glittery Wed 14-Oct-09 21:40:33

ooh hope it goes well!

We went to Cambridge last weekend for glitteryboys powerchair fitting and i took along to occupy me...

A good book
3 magazines
Nintendo DS
Netbook with WiFi for t'internet purposes
DVD Player
Red Bull
Loads of chocolate
My mum!

Overkill for i night i know! grin

glittery Wed 14-Oct-09 21:43:56

yeah that should have said 1 night!

5inthetomb Wed 14-Oct-09 21:46:57

Can you phone them to ask if they have wifi?
Take some snacky things, chocolate, alcohol, nintendo DS, books.

Hope you have a relaxing time, and remember, you are there for a rest as well!

DS2 has his first respite session during half term as well.

2shoescreepingthroughblood Wed 14-Oct-09 22:02:41

i find something like a wordsearch book really good(helped at the hospital) I would think that there will be other parentys there and time for you to meet and talk.
(please report back and tell me all about it)

sarah293 Thu 15-Oct-09 08:08:24

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ChopsTheDuck Thu 15-Oct-09 09:02:34

they are probably used to loud opinionated children! Will she settle after a bit if you do jsut leave the room and them to it?

Hope it goes well for you.

sarah293 Thu 15-Oct-09 09:54:00

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r3dh3d Thu 15-Oct-09 10:26:04

They normally have computers, yes, for moody teens to play violent games on till the wee hours. You may have to whine a bit to get authorised internet access, obviously same moody teens would be straight off surfing for porn if it was uncontrolled.

I find with our hospice what really helped was taking her in there regularly to use the facilities (I don't know how far away you are, we're lucky ours is down the road really) so the sensory room or for a massage or whatever. I have an unofficial arrangment with ours that because she's bringing her own carer with her, and it's daytime only, it's not "booked" time. So we can go as often as we want as long as we call first. She's now really familiar with the place and a lot of people know her. I'd see this 3 days as an investment against future stays, really.

sarah293 Thu 15-Oct-09 10:30:38

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2shoescreepingthroughblood Thu 15-Oct-09 10:34:51

don't worry about her kicking off,dd did when she first started respite(she was 6) she lept escaping and in the end she had to have her own room with a special doorblush
the people there will be used to it, you have to allow your self some time off.

sarah293 Thu 15-Oct-09 10:36:44

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littlejo67 Thu 15-Oct-09 13:45:37

I would say just take yourself and leave the world behind. For me when I took my daughter to the Hospice it was to get peace of mind.I achieved this by sitting in the garden reading womans mags and having personal space to just be in the moment with nothing to do! It will be difficult for you to let others care for your daughter, but you need to recharge your batteries to.
Time for ourselves makes us emotionally healthy. Usually there are sensory rooms and hydrotherapy pools to play in with your daughter if you wish. Plus loads of games consuls you can fight the teens too. But thats if you are looking for entertainment. I found the experience meditative and calming. There are always other mums who can share a sense of Empathy with you too. If thats what you need. Thinking of you.

claudialyman Thu 15-Oct-09 22:17:43

Tell them you need access to mumset as otherwise you will lose your top 10 placing in most frequent posters (congratulations to the 10 impossibly prolific posters) and
it is entirely possible someone would take advantage of your absence to start a thread about the relative rights of motherbaby and disabled parking and you will need to be around to help set them straight.

I would take a book on cd from the library or download one to an ipod, its v relaxing being read to and something ive done when ive had to go to bed with DS and dont want to wake him reading. I think i saw you often sleep in with your DS so it might be good to try anyway wink

debs40 Thu 15-Oct-09 23:07:57

Haven't got anything to add to the great ideas here but I just wanted to wish you both well. xx

sarah293 Fri 16-Oct-09 08:29:08

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claudialyman Fri 16-Oct-09 21:26:57

no ive none either! altho DS does have ipod teddy so he's well ahead of me..the cd books from the library are great. people laugh at my cd player on trains but it took me years to graduate from a cassette walkman so im well accustomed. smile well im glad you dont have to co-sleep every night

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