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early ASD referral for DD2 - suggestions?(21 Posts)
Just go in and say what you think. I've been there so know it's hard (I thought we'd be seen as nutters out forattention) but the truth is that sibling risk is significant, and they know that and will be on your side.
We are having to ask fora referral for ds2 adter ds1's ds3's dx (not asd this time, allied- add, dyspraxia or my betting both) and its a case of <,thunk>> combined with thinking ffs she must besick of us (but she must have asked us 20 times are you sure he's nt, and we were too blind)
oh and they may not dx yet but it is proven thatearly intervention helps, so get in there and grab any portage etc you might get.
it'ss my belief thatsibs on asd children shoyuld have access to salt and tailored support aseatly as parentsask.
Aquestion though- is she on a gf / cf diet? justat 12 minths I described ds4 as clearly at least as; I would say most of those fears have gone now by 18 months and he is gf / cf. Worth a go?
I wouldn't expect a point at a year necessarily but yes, the ignoring an alarm etc thing sounds like ds3 (hyposensitivity- some Paeds struggle to accept that one but they let offa klaxon in the room at bibic and he didnt respond!)
I'd start grabbing in help, treat her for interventions as if she is diagnosed, but don't give uphope- they change so much. DS4 is the miost clingy baby ever (wouldnt separate at all until 16 months), never smiled and just seemed solike ds3- and something clicked, the pint came and he does all the micking stuff I have never sen before. Doesn'tmean he won't take another familiar route- as, dyspraxia, add etc- but things look more positive. The scarppe was close though, enough that DH and I have decided we can't ever risk another child.
I would think if the child clearly meets all three of the triad of impairments (no speech/other form of communication like pointing; no social skills (eye contact, answering to name, shared attention) and repetitive movements/ stereotype movements/ lack of imaginative play, they'd be hard pushed not to diagnose her. They may try to fob you off though, as that way they dno't have to start paying up! Can I really recommend that you think of ABA for early intervention, even just doing a few things yourself? I wasted a lot of time with the crap state provision like portage and TEACCH. ABA, started so early, could really make a difference. One book you could read is Let me hear your voice, which is v good on ABA.
My GP referred dd to ds's paed at 13 months following a sudden regression.Dd was nothing like ds and still isn't tbh. Ds was "odd" from day one whereas I couldn't spot any problems in dd until around her first birthday when she stopped talking, smiling, laughing, clapping and waving.
From the first appointment it was more or less a given that she would get an autism diagnosis tbh. First blood tests were taken to check chromosomes and for metabolic disorders but she was referred straight away to the autism dignostic team and to the LEA. Dd got a moderate to severe autism diagnosis a week after her second birthday.
I would definitely put in place an early intervention programme. Lucy started ABA based programme at 17 months. On assessment at 24 months her development was between 6 and 12 months at 36 months her development was 36 to 42 months. Now at mainstream with a statement(Assessment for statement started at two) she is academically able, no delays or behavioural problems and the autism is very, very hard to spot.
Trust your instincts.
Dd2 was referred at 2 years, i think they (GP/HV) are more likely to refer early if an older sibling is on the spectrum. Dd1's dx took 2 years and she was diagnosed when she was 4, dd2's took a year and was diagnosed at 3.
We knew that dd1 had problems from very early on but at the time we had no expereince of ASD so it was hard to get a referral.
D1 had phobias from an early age, she was scared of females, washing machines, hand dryers etc.., we couldn't take her any where without her screaming at something.
I think you may be unlikely to get a diagnosis - as its a label for life often they are reluctant to label - I think 18 months is the earliest many paeds feel confident in doing so; but you can certainly push for portage and early intervention based on deficits you can identify. You don't need a diagnosis for portage. If you want ABA you will need to start statementing process + tribunals etc unless you have a very progressive LEA. If they can find a genetic cause that would probably make them much happier giving an early diagnosis. If there are any specialist nurseries you want to consider do it now because it could take a year of statementing procedures to get them in. Also be aware your child is entitled to special educational provision from birth - don't let them fob you off and say it only starts at 3.
They are supposed to have separation anxiety leonie but not to the extent that nobody will touch them for 18 months LOL- with asd its the extremes eiother end that you watch for; hyper friendly or reserved, non verbal or hyper verbal etc.... same with eye contact and the like: Paeds look for absence of but inactuality its aberration from the norm they should be observinf .
Leonie, Is at in a lecture by head of LD Psytch tonight and she said many behaviours needed to DX asd don't appear until 18 months and the ADI R an't really be used until then ( UI remembered and noted it LOL).
basically the bar seems to be development at 18 month level- a lot of the behaviours of ASD are considered typical until then so they cannot distinguish ASd from about to develop IYSWIM
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