I hope this is the right place to post. I originally posted 3 or 4 weeks ago in the bereavement area as my son was not expected to survive when he was born. Then a second diagnosis said he would survive after birth, but that the prognosis was poor, so I got my thread deleted as it was in the wrong place. So many people gave so much support, so i wanted to give an update.
Background:
My son was diagnosed with severe brain damage and hydrocephalllus when he I was 35 weeks pg. We found out at a scan to check for a large tummy due to diabetus. In the scan they found out that my son had water on the brain and his brain was missing key areas and had been formed wrongly.
Well, he was born by c section on 28/9 and survived. The hospital was wonderful. I had a private room and the m/ws couldn't have been more helpful.
His head is larger than normal, but he still looks adorable and at the moment he's like any normal baby. As he's so badly brain damaged, we don't know the long term prognosis, and how badly the brain damage will affect him, and we won't know these things until he starts not meeting mile stones, but at the moment we're so grateful to have an adorable, cuddly baby to love that we're trying not to worry about the future.
I'm sure I'll be posting more in the SN area in the future, once I start meeting with the social workers etc. So I look forward to meeting you all.
Thanks to everyone who offered me so much support. I couldn't have got through those bleak days without you. I know hugging is not a very mn thing to do, but I would add a hug emoticon if there was such a thing
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My brain damaged baby- not expected to survive- Update
61 replies
sleepysox · 10/10/2009 21:59
OP posts:
LeonieBooCreepy ·
11/10/2009 10:46
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