ok here goes, Thanks for the welcome girls loads happening but also think i needed a bit of time out from mumsnet too, that thread a while back and a one line comment someone made( dont think it was intended the way it was received at least i hope not) made me feel i was being pathetic and feeling sorry for myself, now i think sod it my parenting experience IS more challenging than other peoples and i have to work damn hard for things nt parents take SO for granted; if i have an off day or even couple so what im doing the best i can.
The ass. was ok lovely lady salt very attentive, i was fully armed expecting to get fobbed off the appt. was at my parents home and was to last 1 1/2 hours actually lasted 3. Didnt do the video fotage though when i went to film louis he didnt want to display any of his quirky behaviours and frankly i found stalking him around waiting unsettling. She took loads of notes and said although she felt asd was a possibility she would present her info to the panel at cdc and they would decide if ds shopuld follow the development ass route or to see the autistic ass team (much longer waiting list of course) the later is what they decided btw. I had letter from the phycologist who heads louis centre in spain i think that was the thing that swung it: alot of the basic dev. ass stuff had already been done by them, including a CHAT at 18 months not that shed told me! pychs evaluation put ds at 16 and 18 months for gross and fine motor skills, 12 for cognitive level and only 6/7 months for receptive and expressive language ouch!!!!!!!!!!! abit harsh i felt as he can make almost all constant sounds apart from l, q, f but oh well.
They are always quite positive unless you ask the straight questions i still dont think she would have mentioned asd now if i hadnt asked. I felt i needed another slap in the face so when i got back i asked her when she first suspected and she said as soon as she meet louis at 12months. Dh was abit annoyed at that he said if we had know we wouldnt have introduced all those dodgy foods into his diet which were followed by such a marked regression, I try to see it positively also, until february we thought we had a little boy who had hypotonia and was a little delayed in other areas due to his late walking; other than that we were blissfully unaware and so happy as a family and no one will ever take that time or those memories away. At the same time im having a lovely time as a first time mom ds was actively receiving stimulation twice a week with asd in mind not all asd kids are that fortunate. The salt from the cdc was full of praise for the stimulation we give ds at home and how well informed i seemed to be, i told her whilst i appreciate the kind words does she not understand it will never feel as if im doing enough for ds, which is why i want specialist help because i dont know where to go next. Also stressed the point that i wanted ds looked at in concideration of all the help he has received from an early age and not just at a glance 23months he can do this and that some of his acheivements have took months of reinforcement, she agreed.
Ds behaved just as i would have wanted him to showed most of his strenghs and weaknesses(although i have to say when he slouched against the play assistant a total stranger and carried on stacking his barrels i had to laugh as i certainly wouldnt say that was typical)
In general i dont want to curse myself but things have been ok both dh and the therapists here seem to think the diet has been helpful to ds which is encouraging; as it is depressing keeping to it when you get comments like cant even buy my son/grandson an ice cream - like it matters in the scheme of things but makes you feel bad as if your depriving child. Ds makes small progress every week he will smile and give dolly a drink or food now (i was so proud) is beginning to throw, climb, is off the bottle can go upstairs better although would still happily walk off top step if allowed. New asd traits appear simultanteously as acheivements though one day he started stacking unprompted then moved on to linning up things hasnt got bored of that half as quickly!!!!!! He flaps and tenses like you wouldnt believe and makes me laugh as he does this strange little bum giggle at the same time. Most importantly eye contact with me and his relationship with his father have returned and that warms my heart.
Have been intouch with BIBIC, trying to wrangle a first ass at mobile clinic in bham and not have to go to sommerset difficult coming from spain.
Have finally got louis into spainish medical system and got a referral to pead. neurologist so hopefully may get CAT and gene analysis stuff done here where i believe they are quite standard.
I could go on but only corspes may remain where there used to be mumsnetters.