DS (2), was diagnosed with CP in July. He has been having physio since December, and had his first session of speech therapy in July.
Today he had a combined session of both, and Im feeling quite mixed up about it all. He wears AFOs and Piedros due to stiffness in his left leg. He can now stand confidently in them, but has no idea how to walk on his own, although he is capable of walking a few steps if someone holds his hands.
The physio was so pleased when she saw DS standing and waiting for her to come (he wasnt standing at the last session), and the look on her face said it all, but then she has always had faith in him and has never failed to help me be positive about his progress. The icing on the cake was when she said he would be walking very soon, and would have expected it to be sooner, but he is so happy to crawl about rather than to test new waters.
My biggest concern was his speech development, or lack of it. He understands everything that is said to him, in both English and Turkish (DH is Turkish). His signing has come on well, even though it has taken time and can now sign 6 things, will shake his head for no, and can tell me if he needs a wee or not.
His last speech therapy was in July, and since then, has not said one recognsisable word. I asked if this was likely to improve and I didnt get a straight answer, and have been given sheets upon sheets of other signs to learn. She is thinking of introducing cards showing pictures so that he can associate them with giving them to me to show what he wants.
She said the MRI tomorrow will show how extensive the damage is, and mentioned portage for when we move to the area. It has just all drained me. I have spent weeks focusing on his walking, yes with positive results, but now I almost feel back to square one with getting him to sign. He is very vocal with his babbling, but has a high pitched type of squeal when he is trying to tell us he wants something. He doesnt even attempt to say yes.
The hearing test conducted in August came back clear, although it was mentioned he had slight glue ear which should clear itself up, and to be re-tested in December.
He has hit the terrible twos with force, and is going through a stage of 'dont talk to me unless I talk to you'. He is even in a strop with baby DD most days.
I often wonder when things will become easier, or if they will. Its all such a huge worry.
I realise there are people worse off then ourselves, and the outlook is positive, but as a Mum I guess its my perogative to worry. I hope nobody minds the long rant
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DS with CP. No improvement in speech. Fed-up and drained
11 replies
chinchi · 07/10/2009 19:26
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