Hi, ds3 2.1yrs is probably going to receive a dx of cp at next paed appt.
He is sat at 11 months, commando crawled at 14.5 months, crawled on hands and knees at 18 months and started pulling up and cruising a little soon after that.He has not really progressed since and is not walking.
When he commando crawled he dragged his left leg a little and when he started pulling up it was only on tiptoes and after a while mainly on left tiptoe - which he is still doing now.
I got him referred to cdc at 17 months where they initially dx hypermobility, after several patronising useless sessions with an awful physio I managed to get the head of physio to reassess him. She has since taken him on her caseload, started proper physio, got him in piedro boots and on a k walker. When we next meet with paed she will say, in her opinion, he has diplegic cp.
This has not been a shock, I have always known something was not right and actually asked paed at last app in july if it could be cp - she thought not..... But I am upset/worried/don't really know how to describe it!! This is normal isn't it? to feel like that? I have no problem with my lovely little boy having a disability just know that life is probably going to be harder for him than his brothers....(oh and I am 25 wks pregnant so massively hormonal and tearful)
Sorry I am rambling on I know, what I really want to know is if anyones dc with cp was a real screamer/crier as a baby. Ds3 screamed for up to 15 hours a day for the first 18 weeks, I knew something was'nt right - that it was too extreme. I have googled crying/cp and have read a few things saying it can be related just wanted to know if anyone else has experienced it?
Right better get the tea on....
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13 replies
verycherry · 28/09/2009 17:26
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sarah293 ·
29/09/2009 09:55
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sarah293 ·
29/09/2009 09:57
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