My good friend's son has been diagnosed with KS, she is naturally in a bit of a pickle with regard to treatment. IMHO, she has been treated very badly, all the paediatrician told her was it's unlikely she'll ever be a grandma. No real strategies or even a treatment plan. She is desperately reading up on the internet about it, but, does anybody have any real experiences I can guide her towards?
I pointed her towards this site, thanks to all who have replied. I also found out about a support group, sadly in the UK, nothing in Switzerland though. Not sure about the politico, I don't tend to see the telly TBH.