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Help!!!

(6 Posts)
eslaymum Thu 24-Sep-09 10:09:44

Just hoping for some support from mums & dads with similar problems,as feeling rather alone.My dd is two & a half,she does not walk(walks on knees & cruises)& does not talk(started to say dada acouple of weeks ago),she is currently being seen by the hospital paed(had numerous bloods,x-rays,hearing tests-all clear,awaiting results of recent MRI),SALT,physio & community paed.Every professional is perplexed by her & has not diagnosed her.She is a bright,very sociable little girl,she interacts with the world very well apart,of course from not talking.
This is really getting me down and would love to hear from others,thanks.

Scottie22 Thu 24-Sep-09 12:14:40

Must be very frustrating for you not having any answers. Sounds like she's getting there with her walking if cruising and walking on knees. I hope your mri can shed some light but I do know a child who walked very late and is not talking who has a clear mri so still no answers - they are looking at dyspraxia apparently..

My dd walked quite late at 20 months but is still very wobbly due to problems with her trunk - her mri told us what the problem is though.

Fluffypoms Thu 24-Sep-09 12:31:11

Hi,
Eslaymum,

I have just started a thread as we are in same situatin as you dd has delayed motor skills isnt yet walking,crusing ect. she too has had mri and the rest..we had our results appointment by still no dx.and will be doing all tests again.

I totally understand why it is getting you down and why you need answers. so sending ((hugs)). Hope you get some news.

meltedmarsbars Thu 24-Sep-09 12:37:31

Good luck in the long process of diagnosis - it took 18months for my dd2, to find a condition with 6 other cases in the UK.

Remember that you may not find a diagnosis, some children still mystify the doctors sad
but it sounds like you have already got lots of good interventions and therapies.

eslaymum Thu 24-Sep-09 13:34:19

Thanks for your kind messages,hope to get results from MRI soon.Hugs to you too fluffypoms.

Fluffypoms Thu 24-Sep-09 14:24:27

Let us know what happens with your results eslaymum. and good luck x

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