Here is a poem that I wrote today for my 6 year old son. It is quite long, it started out short, but my little boy loved it and kept asking me to write more. I intended it to help other people see the daily struggles that ASD children have without writing anything formal. He asked me to read it to him about 3 times. I think that it helps him to know that I understand him.
You've put it so well. And one of the positive things out of all this is that special bond you can have with your child when they know that you really understand them in a world when others don't seem to.
Thank you so much everybody. Marne you cetainly can print it off, I hope that it does help people understand. I think it worked with my family yesterday. They were emotional too. Thanks again everybody x
Thought your website was excellent,i keep a blog on wordpress that was going to be just about my children...however i always get side tracked and often use it as a place to go and rant about other stuff too. I've often thought i should filter stuff out and just set up a site just for SN realted stuff (have one child who is quadraplegic and CP and a son thats autistic...somewhere on the spectrum). My husbands a computer programmer and often offering to help me set up a proper website,i guess i'd just need to be a lot more organised than i am atm lol. Thought you'd done a great job on your site though and liked the review of your sons progress that you've charted :-)
Jo5677, it sounds like you really have your hands full. Though isn't it true that children with special needs can make 'special moments' with just the simplest things. Just saying a single word that they don't normally can bring goose pimples to your arms.
I always say I wouldn't change my DS, just take away the health problems that seem to come with his ASD.
I'm ashamed to say that I actually struggle a little now whenever I look after NT children, they seem so demanding and spontaneous and I am just not used to it My little boy tends to play the same things, DS, Computer, Lego and anything Mario based. Other children say they are bored after playing with something for 5 minutes and they seem to sneak around pressing buttons on anything they can find (Tv, stereo, phone). I guess I'm just not used to that any more.
When you said your husband is a computer programmer this really echoed something that somebody said to me a few years ago.
A lady I met at school who has a child on the spectrum and also knew about my DS said that her husband is a 'Computer Programmer', she then went on to say that a apparently a massive percent of ASD children have a parent that is a 'Computer Programmer'. I went a little red when I told her what I do for a living - Yes I'm also a 'computer programmer'. You totally reminded me of that day. I don't know how true it is though.
I don't know much about CP, although I have read snippets of info on here. I would definitely recommend a website. I learned so much info and tips from other similar websites on the internet. The kinda stuff that you never hear from anybody in the medical profession. When I read back through my stuff and it's amazing how many little things you forget. Its almost like a diary. It also helps my family to keep updated as well.