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Results are in

(33 Posts)
Phoenix4725 Thu 17-Sep-09 16:40:38

Well ds Mri results are in and had a meeting , seems that ds laungage or lack of is not just down to the oral dyspraxia .Turns out at some point they reckon probably befor the birth ds had a blood clot and the part of area that controlls speech is completley destroyed which would explain whe he snever done any sound other than uh.

There is also some damage to area that controls movement as well ,That i can handle but was the realastion today that ds is likely to never speak and no amount of speech therapy will make any differnace to his inablity to verbally communicate

jjones Thu 17-Sep-09 16:55:56

I am sorry about the results, (((hugs))). At least you know now though and you can work on giving other comunication stratagies a go.

2shoes Thu 17-Sep-09 16:58:51

sorry about the results.

frazzledazzle Thu 17-Sep-09 17:14:45

Sorry to hear this.

usedtobeadinosaur Thu 17-Sep-09 17:23:41

I'm sorry to hear this, Phoenix.

5inthebed Thu 17-Sep-09 17:25:58

Sorry about the results phoenix. <<hugs>>

Barmymummy Thu 17-Sep-09 17:34:13

So sorry to this Phoenix sending you big hugs, x

busybeingmum Thu 17-Sep-09 18:20:00

Message withdrawn

Phoenix4725 Thu 17-Sep-09 18:26:08

Thank you all , don`t think its sunk in properley yet , find myself welling up

BriocheDoree Thu 17-Sep-09 18:44:36

Oh, Phoenix you must be so upset. So sorry about this!!


lou031205 Thu 17-Sep-09 18:45:42

Oh Phoenix sad Will you tell him, do you think? Does he ever ask why he can't speak?

brokenspacebar Thu 17-Sep-09 18:54:55

((Phoenix)) - that is so much to take in.

Phoenix4725 Thu 17-Sep-09 19:15:49

no thankfully he does not ask though guess that might happen in future atm he just accepts it but with the Ld he is mor elike 2.6 not 4.2.
Knowing not going to ever hear mum or I love you though he can sign both but you know what i mean

I am going give it few days then gear myself up for fight for ACC seems pointless waiting and seeing now

trace2 Thu 17-Sep-09 19:54:25

so sorry (((hugs))) dont know what to say other than we here for you!!!

MoonlightMcKenzie Thu 17-Sep-09 19:56:42

Oh Pheonix!

TotalChaos Thu 17-Sep-09 20:03:30

Phoenix, very sorry to hear you have had such upsetting test results.

misscutandstick Thu 17-Sep-09 20:14:46

Hi phoenix

What thoroughly cr@p news. I know its exactly what you were hoping it wasnt. Im so sorry.

But on a very very dim brightish note, you have an answer, a root cause. I know you wish it wasnt and im gutted too, i know how much it meant to you. I guess one day he will ask why too, and at least you have an answer for him.

But thanks to you and your hard work (and of his of course too) that he can sign and you havent waited and wasted time.


meltedmarsbars Thu 17-Sep-09 21:04:52

Sorry you've had upsetting news.

Like misscut says, at least you know now, and you can work from there, and build on the other communication methods you've already started. My dd2 can't speak but we all know what she's trying to tell us!

RaggedRobin Thu 17-Sep-09 21:14:38

this must have been very unexpected, phoenix. your instincts about your ds's leaning towards signing have been right, though. hopefully he has a lot more progress to make in this area.

e. x

mysonben Fri 18-Sep-09 01:30:50

Sorry you have had bad news.
Sending virtual hugs your way. xx

troutpout Fri 18-Sep-09 06:40:03

I'm sorry about the results Phoenix

Phoenix4725 Fri 18-Sep-09 06:50:53

thank you

Had a rough nite but woke up this morning ready to gear myself up for the next fight regarding equipment and training at school for the staff.

The bloody Lea going have to put the funding ,in place as no S*L unit going want him now mind not that they duid with Ld.

magso Fri 18-Sep-09 08:46:51

So sorry you have had difficult news. ((HUGS))
Can you get written reports to state what ds will need to help fight for suitable communication support?
Take care -Magso

tingler Fri 18-Sep-09 09:03:24

thinking of you (have name-changed - swap the T for an L and remove final r).

tiredmummyoftwo Sat 19-Sep-09 19:19:18

So sorry phoenix, thinking of you.

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