school meeting bad outcome

[Phoenix4725]

Well went into what will be ds school today and what a feck up .There makton training consisted of 3 hrs in total , his lsa and class teacher has had no more , or no experaince of using makton, pecs no training for pecs either or working with a child with Ld and language problems.

They are all talkingmaybe more training february time and that ds will just hve to bare with them whiles they try to communicate,

despite me saying that if they cant comunicate with ds he will shut down to them to everything and will go of in his own little world ignoring everyone and it would take them months for him to trust them .

They have no software their visual timetables are thrown together add hoc from cli part his lsa had never herd of now and next boards,,They did not even realise that ds uses a wheelchairand will be wearing afros or fact he cant sit on stool due to his low tone and thats what they use at luinch time , despite me keeping them update.
No date when speech therapist or even who will be his , to go in for their termly visit to set up a program that one i am taking Lea to tribunal overlack of quality sspeech theraphy

So basically I am going to have to go in and stay with ds every day doing their job for them , inorder that ds will not regress ,I worked so hard with him to get to where he is now and dont want to lose him to his own litte world again

[daisy5678]

Oh Phoenix - that's dreadful. Can you call an emergency meeting with head and others involved?

[anonandlikeit]

Phoenix, thats shit, they will be failing him if they do not improve things for him.
Give parent partnership a ring, see what their local support worker can offer the school?
Do you have a key worker or amily co-ordinator that can give them a kick up the backside.
Contact the head of the local SALT dept & tell them he is going to be going in to the school where none of the staff are trained to communicate with him & he/they need emergency intervention.
OT needs to get in there & do an emergency assessment of his needs, if they do not have adequate seating for him he will not be safe.

Do not take the responsibility away from them by going in to school & doing their job for them.
Area SENCO also needs to be aware of the lack of provision in the school for a disabled child & they are failing to make resonable adjustments to allow him to access the curriculum - His basic right!

[Phoenix4725]

I tried to she like im not adveresd to more training around early next year as Lsa etc need time to absorb what they learnt today .I never did i did makton 1-4 in 2 days 6 hrs a day also done 4-8 and put myself through pecs training .They did not even have any makton core signs/symbols books

I came home and cried so scared if im not there i know he will regress if cant communicate .

There will be another maton user in class so there talking them work together she has 10 signs ds has over 100 and uses 2 regulary now putting 3 together .

They talke dbaout switches for computers on and off a 2 switch thing , ds uses a tracke rball really well and on computers hes pretty much where he shouldbe for a 4 year old

[anonandlikeit]

Sorry for teh rant Phoenix, it just makes me so angry, because it would actually take very little for them to make htings work for your ds.

[Phoenix4725]

oh they known hes coming , no date when salt goes in and they seem think their 3 hrs of makton training is enough to go on .Have phoned and requste potential salt call me urgent but shes on annual leave its a fuck up all round
ot going in October so not sure what going to do till then

here headteacher is also the senco
no keyworker identified or anything parent partnership here are hand in hand with Lea tomorrow I will be on phone yelling at Lea but just dont know where to go next

I`m going to push school but till thinsg happen i so know i am going ahve to do it for them ffs

[Phoenix4725]

yes he has tatement for 1-1 but pecs not appeared as salts never used wih him I went trained and taught him of my own back.
Says peole working with him must b mkton trained orexperianced did not realise 3hrs counts as training .

Oh im going to be yelling hard.Iam alread taking Lea to tribunal oer lack of salt , one visit a term this for a non verbal chid wth severe verbal ad oral dyspraxia and a receptive delay of 2.9. he be to tired to work at home with me

[Phoenix4725]

I can`t even get private salt to help as not one within 60 odd miles that has the experiance to work with ds

[anonandlikeit]

Yes but they at least have to be trained up to HIS level, if he has over 100 signs & 2 to 3 wrd phrases if they cannot understand his needs then they are failing him & their minimal training is inadequate - they are therefore complying with his statement.

[anonandlikeit]

Phoenix, there is a private SALT with lots of child, ASD, makaton & PECS experience.
I think he is based Essex/Suffolk borders, I'll dig out his details, I did consider using him for ds2 but the NHS salt stepped in.
Will try to get my old brain to remember his name

[TotalChaos]

sorry the meeting was so crappy and you now don't have confidence in the school.

[moondog]

Phoenix, so sorry to hear of your troubles.
If it is any consolation, I really doubt people are being deliberately obstructive. It's the fault of a useless outdated system and overworked professionals bogged down by menaingless paper exercises. Still, that isn't your problem.

The Makaton Trust have specific training pathways for professionals. I suggest you give them a ring .I am sure thay would be very supportive about perhaps writitng to yuor LEA to say what is on offer is not good enough. It would carry a lot of weight.

(They are a charity so perhaps you could offer to donate in return for this?)

[Phoenix4725]

Thank you everyone

annonandlikei

Think gentleman in question is a martin Limb? had couple long conversations with him hes been helping me to try fnd someone with reverlant experaince and space and someone willing to travel .Hes booked up and was honest that the end ds is with the verbal/oral dyspraxia is just to bad for him.YEt me as the untrained proffesional is ment to cope !! mind i am dam site more ualifed than the school.Think was the he will just have to wait for us to learn annoyed me hell how can they teach him if cant communicate and once he shut down to them he will disappear in own world he needs engaging <br /> <br /> Im not angry at lsa,teacher its not their fault been thrown in deep end am at the head tht she seen fit to use a lsa with no experiance in working with someone with Ld and language issues

thanks for idea qriting/calling makton chairty and will be more thn happy to donate

[notfromaroundhere]

Phoenix sorry to hear about this situation. Are you in touch with families in focus Essex
I can't rate them highly enough, they are helping me out with some stuff atm

hope you get it sorted

[saintlydamemrsturnip]

That is crap. We had similar when ds1 started mainstream. They trained one person, she left the next week, no more money for training. No-one PECS trained in the school.

Is there another school option locally?

[Phoenix4725]

its the only school where i live , have looked at few other schools withibn 15 miles or so but they were even worse , heads were plain spoken and did not want them but if was just that might been tough shit your gettibg him but was more faclites etc .

Am going to stick out and after term going to use as evidence that lea/school are failing him and push for sn or language unit in next xcounty

will try family infocus forgot about them ty

[Phoenix4725]

sadly we hit problem already , ds cant comminicate as they are not up to his level of makton, no pecs nothing ,I went in first day and they kept having to ask me what he wanted, was saying etc.Then they did story with actions they opbviously not thought through as the action was saying something else to ds .One point they was talking about dancing but ds was seeing sign for helicopters.Also they was like oh he amuses himself well and enjoys playing on his own .Im like yes hes given up already and is of in his own world if you don`t engage ds he does this ,

Till salt gets in end of month only way its going to work be me going in every day and staying with him

[daisy5678]

So sorry phoenix. I would push for emergency review of statement ASAP to try for a move.

[TotalChaos]

sorry this school is proving as bad as you fear, agree with givemesleep, this situation is utterly unsatisfactory. If you didn't go in, would your DS get frustrated, or just go even more into himself? not a great sign that they don't seem worried about him being by himself so much....

[anonandlikeit]

Sadly Phoenix, you have the same problem we had with pre school... ds2's reaction is always to withdraw & become more passive.
The preschool LEA lady actuallt told me as he wasn't a problem to the class/teacher he would not get extra provision.

It is a very short sighted & ill educated approach of the LEA profs that they do not see extreme passiveness (if thats a word) as a behavioural issue.
Thankfully we have a fantastic paed, psych & OT who stepped in & he now has all the support he needs.

Have you got any profs who can kick arse & get this sorted.

I know you are doing whats best for your ds in the short term but you being there really is giving them any easy ride.