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Here some suggested organisations that offer expert advice on SN.

not a good day...

(5 Posts)
MABS Tue 01-Sep-09 18:23:43

so upset,after 2 years of trying botox etc in the bladder for my ds aged 8, we have now been told he prob needs permanent surgery. He is incontinent as he has a neuropathic bladder and currently self catherises 5 times a day.

He has mild left hemiplegic cp, and all the drugs etc havent worked. Anyone been thru this?

2shoes Tue 01-Sep-09 18:30:20

oh MABS sorry to hear things are still not good. have you tried Special kids in the uk|? there might be some one on there. I did try at dd's school but no luck.
are you still under that lovely "casualty" doctor?
soon dd's school are going to set up a forum on their website, that might help to get you in contact with someone.

mumoverseas Tue 01-Sep-09 18:36:27

oh MABS, no advice but just wanted to send you (((hugs)))

MABS Tue 01-Sep-09 18:37:47

thanks sweetie, yep same doc and another marvellous one in london too. wetend to see em both at Tommys now not locally.

2shoes Wed 02-Sep-09 07:51:38

bump

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