so upset,after 2 years of trying botox etc in the bladder for my ds aged 8, we have now been told he prob needs permanent surgery. He is incontinent as he has a neuropathic bladder and currently self catherises 5 times a day.
He has mild left hemiplegic cp, and all the drugs etc havent worked. Anyone been thru this?
oh MABS sorry to hear things are still not good. have you tried Special kids in the uk|? there might be some one on there. I did try at dd's school but no luck. are you still under that lovely "casualty" doctor? soon dd's school are going to set up a forum on their website, that might help to get you in contact with someone.