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Another Low tone question!

(21 Posts)
Ravenousbeast Fri 28-Aug-09 16:56:07

I'm asking lots of random low tone quesions on here recently as I am trying NOT to google about low tone (for my sanity) but we haven't had our first appointment with the specialist yet so all we know is (from a general paed)
ds has low tone ....

Today my question is....if the low tone is improved through exercises etc; can we expect an improvement in other areas too such as social interaction (where ds has marked delay) ?

Phoenix4725 Fri 28-Aug-09 17:11:01

hmm depends how old is ds?.Ds has low tone but also has a global delay as well as well as Sli

Ravenousbeast Fri 28-Aug-09 17:13:11

He is just a tiny one - 5.5 month

Phoenix4725 Fri 28-Aug-09 17:20:14

ok so very yung and its good that someone has noticed concerns already hopefully theraphy should start kicking in fast.What kind of social delay interaction does he show?

Took me 2 years to convince anyone that ds had a problem.I cried day someone agreed with me

Ravenousbeast Fri 28-Aug-09 17:23:25

He doesn't smile at me much...or at ds1 ; more so at dp. no giggles, no laughing sad
no peek a boo, tickles etc etc

Phoenix4725 Fri 28-Aug-09 18:05:11

sounds like my ds at same age but he also has othe rissues so dont worry

.But there is hope he will do things might just take him longer

Scottie22 Fri 28-Aug-09 20:04:18

My dd has low tone although it can also fluctuate to high when she's excited or stressed. It is particularly apparent in her trunk but she managed to walk at 20 months. It has improved leaps and bounds with exercise - she is very physical and active despite finding things more difficult than other children. Her gait is still a little unsteady due to her trunk.

She was also late to smile - noted by our Paed and I thought she was rather too placid as a baby. However she is now extremely alert, bright as a button and very social.

Obviously all children are different but I've been through hell with worry about dd and she couldn't be doing better given her terrible start in life (starved of oxygen, brain damage and a stroke). Just wanted to give you a positive story...

meltedmarsbars Fri 28-Aug-09 21:19:09

I really feel for you - se went through something akin to this when our dd2 was young. Low tone is such a catch-all symptom, its hard to guess what other connected problems your ds has, but you really won't know until you get a diagnosis - and that may take years. How fast a child develops is influenced by so many things that it is a "piece of string" question. Our dd2's low tone was classed as a "delay" along with all the other delays, until they started to eliminate possible reasons and narrow it all down to a (very rare) underlying reason.

It sounds glib but the best thing you can do is find something positive to enjoy each day.

laumiere Fri 28-Aug-09 22:09:45

We had the same as meltedmarsbars, DS1 was classed as low tone at birth, when other issues became apparent he was DXed with cerebral palsy.

PipinJo Sat 29-Aug-09 17:59:58

Message withdrawn at poster's request.

Scottie22 Sat 29-Aug-09 19:51:25

Quite agree with you PipinJo - our physio has always been similarly negative on the whole - so glad you questioned her!! OK the tone might not change but they will nearly always develop strength. There is loads you can do to strengthen low tone - our OT was far more positive and gave us lots of exercises. My dd is utterly determined and will sometimes even attempt physical things that other children without problems won't do - there is no telling her she can't do it

Phoenix4725 Sat 29-Aug-09 20:14:38

yep they told me ds wont walk , he does ok its slow and doddery but he can do it

best thing is your in system now.And remember baies dc cant read rule sheet physios working from

PipinJo Sat 29-Aug-09 21:42:25

Message withdrawn at poster's request.

laumiere Sun 30-Aug-09 10:50:43

Raven just echoing pipin we were told DS1 'might' walk by 4-5 with assistance from a stick. He started walking (unaided!) at 2mo 9 and now at 3yo can walk about 2 miles a day. He still gets tired quickly and needs a LOT of food to eat as he burns so much energy moving his muscles.

Things I found you may also want to watch out for:

Baths are great for muscle relaxation when they've been exercising (get a non slip mat or sponge seat til your DS has enough truck strength to feel confident)

DS1 overheats really quickly due to burning all the energy, so we have to be careful in hot weather.

Best thing for little ones, sit him on your leg (astride with one leg each side) and support his hips, that way he has to work his core muscle to stabilise. We found with DS1 once the trunk was sorted everything else followed

Best of luck!

barnpot Sun 30-Aug-09 17:05:04

hi I have just braved to come on the sn site. my son who's 1 on wednesday was starved of oxygen at birth had fits etc. (very long story) he has low tone in his trunk but high tone in his legs and poor co-ordination in his arms. all I can say is I'm appauled by the attitudes of some physio's OT's and consultants. my sons physio is fab she tried to break the cp news to us gently and is considerate to our feelings throughout his treatment. as a health professional myself I understand that people need to be realistic but people also have feelings.
I believe he may be a bit behind mentally because hes not had the oppertunities babies his own age have had, for example for the first 6 months of his life we were unable to put him down, as he cried all the time and as a result has become very shy around new people, but as before he wouldn't investigate the new person, now if you let him think about it for 10 mins he'll quite happily 'talk' to them.
when i find myself thinking about what he should be doing for his age group, i remind myself that these 'professionals' only gave him 48hrs to live, and if he survived he most likely would be severly disabled. well hes come so far but we know that there is still a long road ahead. just get through one day at a time smile

badkitty Sun 30-Aug-09 18:21:39

barnpot, I have the same story as you except my DS was born three months later - also has low tone in his trunk and high tone in arms/legs although more so in the arms at the moment. Most of our consultants, physios etc have been pretty nice although I have at times got the impression that they have kind of written him off, especially at the beginning.

Ravenousbeast I am sure your DS's social skills will improve he just needs a bit more time than other babies - my DS was very slow to smile etc and is probably still behind, but he is very smiley now, at least with people he knows, and also learnt yesterday to give his Daddy a high five!

barnpot Sun 30-Aug-09 18:41:40

badkitty, these kids are amazing everyday ds just astounds me he is difficult at times and becomes very wingy especially when tired but hes good at communicating his needs. physically hes getting there hes just started sitting with propped arms but still has the bad habbit of throwing himself backwards when he gets excited or frustrated. but the physio has assured us that he will grow out of this

barnpot Sun 30-Aug-09 18:42:38

sorry hijacked thread a bit, sorry x

Ravenousbeast Sun 30-Aug-09 19:40:40

Thanks everyone for all the messages and the positive stories & encouragement. Sounds like you all have amazing dc!

madwomanintheattic Mon 31-Aug-09 18:23:47

tone can change a lot as dcs develop too. dd2 (term but birth hypoxia, szs and 5 weeks scbu/ ng fed) was high tone and dx with spastic quad cp originally (at 2 - she was 'developmetal delay' from birth, although in hindsight they knew she had cp in scbu lol as they put in full physio/ slt package before allowed home). she's now 5 and has mostly low tone but fluctuations consistent with athetoid cp (current dx).

physical disability can impact on other areas - dd2 has trouble being understood due to her oromotor difficulties, which can impact on her social skills etc, but it doesn't seem to have any any impact on her cognitive ability. (sometimes difficulty with movement can reduce access to environment etc and so impact on learning opportunites)

get a gym ball grin every low tone baby needs one. grin

meltedmarsbars Mon 31-Aug-09 18:36:03

Depends how low tone - my dd2 was like a sleeping child when she was a baby - completely floppy, then couldn't sit at 18m, but can bum shuffle now at 7 yrs. She's improved a bit over the years!

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