every little thing knock her for six we think she as an infection but not tolerated any feeds in 13 hours and getting dehydrated again i think she will be out this morning though and i had to stop here with ds who AS and dh stopped with chloe i hate being away from here at home am her night carer but ds as his routines and just wont stop with dh.
am getting so tired of every little thing her getting it worse than every body and ending up in hospital, could there be a reason for this?
ask them next she has blood test if can do .DD was the same simple things would hospitliase her .Waswnot till she was 2.6 and I begged my sons paed to have a look at her .He took one look at her file and say something not right and loh and behold turns out she hardly has immune system and was using all he engery to fight infection instead of growing.
She now 17kg at 6 so is still on tiny side but so much better
My dd is 4.6 and only weighs 24lb she has had a lot of infections and hospital stays, she has just started to fight things a bit better but up to the age of 4 was a nightmare. She has had all the immunity tests so ask for them to put your mind at ease, my dd's were all clear not big problems detected she just picks up everything cos she cant fihgt things. She got put a small dose of trimethprim every day which really helped her, this is usually for urine infections but can be used as a barrier to ward off over infections, she was on this for 2 years and has just come off it in May and fingers crossed no significant infections yet.
I would question why they wont do tests. We had a paeditrician at a localn hospital who wasent doing much so went bacl to gp who referred us to hospital in Leeds who agreed to do the tests. They were the ones who put her on constant trimepthiprim (her local paeditrician had never even heard of this been used to fight infections before they occur). Even if they all come back negative at least you will know
wew been back today chloe is now only taking 100 ml of neocate in her feeding tube, she is losing so much weight if still same friday shes back in but they no idea what else we can do, to top it of they have equipment to feed her with no luner lock tubes we getting worred we may lose her.
only just spotted your thread im so sorry your going through this worrying time i really hope they find whats causing this and she can have speedy recovery have no wise words to give but send lots of hugs to you both x
no just started her back on half strength milk and she as took two 30ml so keeping fingers crossed she can tolerate it but not really know till she on full strength tomorrow. thank you for asking i will keep you imformed !!