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How many calories for a 5 yo quadraplegic

(25 Posts)
sarah293 Mon 10-Aug-09 12:01:17

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scaredoflove Mon 10-Aug-09 12:14:02

is she tummy fed?? how long has she had her peg/button??

I only ask as many families I know, before the tube the child wasn't getting enough nutrition. As soon as they were pegged, they shot up in weight

Is there anyone else, other than the dietician that can advise? Any keto forums out there? The advice from other parents is what I go on in regard to my daughter

Is she spastic or dystonic? My daughter is dystonic/ataxic and getting weight on her is impossible, too much body movements that burn the calories quick. Friends child, who is spastic quad, gains weight really quickly

Sorry no real advice there was there

sarah293 Mon 10-Aug-09 12:18:39

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sarah293 Mon 10-Aug-09 12:19:49

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scaredoflove Mon 10-Aug-09 12:27:33

can you go above the dietician? pretty bad practise on her part. Email her superior

These people make me so mad

lou031205 Mon 10-Aug-09 14:42:04

Average need for a 4-6 year old girl is 1545.

lou031205 Mon 10-Aug-09 14:48:15

Apparently there is a formula:

Resting Energy Expenditure= (22.3xFat free body mass (kg))-(9.4xage (y)) + 557.

lou031205 Mon 10-Aug-09 14:53:44

Another website says that a 5 year old on bedrest needs 1051 kcal per day.

sarah293 Mon 10-Aug-09 16:28:04

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r3dh3d Mon 10-Aug-09 16:38:41

Not really helpful, but DD1 is hemi and a "maintenance" diet would be 2 meals a day, so about 2/3 of what other kids eat. Which would bear out the 1,500 versus 1,000 figures.

However, "bed rest" is bed rest for a child who is normally mobile and so has an average lean muscle mass. So presumably you'd have to push that measure down for a child with reduced muscle mass. Even just lying about, I think your muscles take a fair bit of energy to maintain.

r3dh3d Mon 10-Aug-09 16:42:48

Lou's formula, assuming exactly 6yo and exactly 14kgs (wild approximation, obviously) comes out at just over 800. So probably about 850 for your LO?

lou031205 Mon 10-Aug-09 17:15:38

But don't forget that 'Fat free body mass' refers to an accurate measurement with skin calipers, then converted to a mass.

wannaBe Mon 10-Aug-09 17:21:32

wasn't she underweight before though riven?

Correct me if I'm wrong, but didn't she have the G-tube because she was underweight and couldn't eat the amount of food she needed herself?

How much does she weigh?

Is it possible that the gain is partly down to the diet but also partly down to the fact she's not having seizures so her body can focus more on absorbing the food/gaining a bit of much-needed weight rather than seizing?

lou031205 Mon 10-Aug-09 17:42:00

I think the trouble is that for your DD any weight gain has to be chubb. Body builders have to put on mass before they can work their body to build their muscles.

sarah293 Mon 10-Aug-09 18:03:14

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lou031205 Mon 10-Aug-09 18:35:46

16kg is bang on 9th centile. 110cms is 25th centile.

glitteryb6 Mon 10-Aug-09 18:51:17

ds was weighed today at the hospital, he was 16.8kg, before the button op in November he was 9.7kg.

calorie wise he has 1020 calories (750cals from milk, 270cals from Calogen) plus what he eats and drinks, anything from nothing to chips and curry depending on his mood grin

he still pukes like a trooper (filled a tupperware infront of the doc) but no-ones bothered as he's gaining weight!

we are aiming for the 25th centile!

glitteryb6 Mon 10-Aug-09 18:52:32

his belly now hangs over his trousers blush

sarah293 Mon 10-Aug-09 19:01:38

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glitteryb6 Mon 10-Aug-09 20:23:47

told both the dietician and the neuro that he is even fussier and more controlling than before about what he does and doesnt eat orally which is quite frustrating.

they both just said dont worry its normal 5 year old behaviour/he's gaining weight/he's getting all his nutritional requirements thru his tube/let him eat what he wantshmm.....Greggs sausage rolls it is then grin

wannaBe Mon 10-Aug-09 21:56:44

I wonder if you could link up one of those fruit shoot bottles to the g-tube. wink grin

glitteryb6 Mon 10-Aug-09 22:20:23

nah theres only about 10 calories in a fruit shoot, need to liquidise the sausage rolls, maybe add in a McDonalds caramel sundae and some chips too? grin

meltedmarsbars Tue 11-Aug-09 07:34:32

Riven, I'm going off trying the ketogenic the more I hear...... we're supposed to be "considering" it.

sarah293 Tue 11-Aug-09 15:02:02

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meltedmarsbars Tue 11-Aug-09 16:28:47

Ours is not for seizures, but to provide an alternative energy source (not absorbing carbs).

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