is she tummy fed?? how long has she had her peg/button??
I only ask as many families I know, before the tube the child wasn't getting enough nutrition. As soon as they were pegged, they shot up in weight
Is there anyone else, other than the dietician that can advise? Any keto forums out there? The advice from other parents is what I go on in regard to my daughter
Is she spastic or dystonic? My daughter is dystonic/ataxic and getting weight on her is impossible, too much body movements that burn the calories quick. Friends child, who is spastic quad, gains weight really quickly
Not really helpful, but DD1 is hemi and a "maintenance" diet would be 2 meals a day, so about 2/3 of what other kids eat. Which would bear out the 1,500 versus 1,000 figures.
However, "bed rest" is bed rest for a child who is normally mobile and so has an average lean muscle mass. So presumably you'd have to push that measure down for a child with reduced muscle mass. Even just lying about, I think your muscles take a fair bit of energy to maintain.
Correct me if I'm wrong, but didn't she have the G-tube because she was underweight and couldn't eat the amount of food she needed herself?
How much does she weigh?
Is it possible that the gain is partly down to the diet but also partly down to the fact she's not having seizures so her body can focus more on absorbing the food/gaining a bit of much-needed weight rather than seizing?
told both the dietician and the neuro that he is even fussier and more controlling than before about what he does and doesnt eat orally which is quite frustrating.
they both just said dont worry its normal 5 year old behaviour/he's gaining weight/he's getting all his nutritional requirements thru his tube/let him eat what he wants.....Greggs sausage rolls it is then