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Hi. I' new. Quick introduction (except it turned out to be quite long!)

(21 Posts)
annie987 Mon 27-Jul-09 21:19:44

I have been reading this board for a few months but have finally placuked up the courage to post.
My son James is 2 years and 2 months old and is 'special needs'.
He was born at 29 weeks weighing 1 lb 8oz due to poor blood flow to him. He is one of twins.
He has Global developmental delay - not yet walking, poor speech and understanding, delayed fine motor skills etc.
He receives physio for hypermobility and low muscle tone - he currently wears piedro boots with insoles but is being fitted for splints in August as his feet are rotatin so much the physio is worried they may 'collapse'.
He has a speech therapist who he sees and we are also being sent on a Makaton course to aid communication with him.
He is very small for his age - just hit 20lbs and 79cm. He has been referred to a geneticist to see if there is a reason why he he is so small and late developing. There is some question over Russell Silver Syndrome.
He see an Orthoptist as he has Browns syndrome (a posh name for a lazy eye!)
He has a portage worker who we see fortnightly and we are waiting to see the Ed PSych.
He starts Nursery in January when he will be 2 1/2. Its an assessment place to determine what help he will need when he starts school.
He has also had 2 bouts of surgery to correct a hypospadias!
I think that's it.
To all intents and purposes he is basically a 13 month old boy (who is actually 26 months old!)

wrinklytum Mon 27-Jul-09 21:54:16

Hello Annie,welocome to mn.I have 2 kids,1 nt and 1 little monkey with gdd due to immature brain development,she is gorgeous,though.

Hello to James

mummypig Mon 27-Jul-09 21:54:26

Hello Annie, don't have any insight into your particular situation but welcome to the board.

wrinklytum Mon 27-Jul-09 21:56:04

pS dd did not walk unaided until 3.She has very little language but is adept with pointing,screeching and screaming,lol.She is also learning signs

mum2fredandpudding Mon 27-Jul-09 22:02:24

hi annie. welcome to the sn boards. as you already know a wonderful place to ask questions nad find useful tips. An even better place to find support in a world where it can be so hard to find other people in the same boat, to have people understand the fear and concern gripping our hearts.

is james' twin NT?

i have 2 boys the eldest of which is 2.9 and ASD and he is the love of my life (as is hos brother)

mysonben Mon 27-Jul-09 22:13:46

Hi, welcome to MN, you'll find lots of support and advice here. grin

I have 3 kids, my ds2 who is 3.9 has mild asd, and i'm so glad to have this board to talk , vent, ask questions,... wink

RaggedRobin Mon 27-Jul-09 22:17:00

Hi annie - sounds like you and james have a very busy schedule! this is such a helpful board. i'm sure you'll find it very supportive.

siblingrivalry Mon 27-Jul-09 22:17:00

Hi Annie -glad you found us smile
I have two dds -the oldest has Asperger's. I have found the support here to be invaluable;I'm sure you will, too.

HelensMelons Mon 27-Jul-09 22:24:42

Hi Annie

Welcome to the sn board - it's very helpful and supportive.

I have 3 DC's, DS1 (nt), DS2 (asd) and DD3 (nt).

Hello to your dc's!

monstermansmum Mon 27-Jul-09 23:49:10

Hi Annie-my son is nearly 8 and has Angelman Syndrome=SLD, epilepsy, scoliosis, non verbal etc. He didnt walk till he was 3.5yrs but he's doing really well now. I also have 4 other children inc step-kids. Feel free to ask any questions, somebody on here will have an answer for you. grin

Phoenix4725 Tue 28-Jul-09 07:46:48

hi Annie and welcome

I foundthis board and the people on it has been a fantasic support

Have ds who is 4 though is more like a 2-2,1/2 year old and has Global delay,hypermoblity ,low muscle tone and verbal and oral dyspraxia as well as problems understanding ,.He is non verbal still but uses makton to communicate all else he will screech and drag.Can fully recommend something special on cbeebies ,dvd or on bbc i player.

He to wears peidro boots and were due to have splints any time soon to as well he also has a lazy eye .Ds did not walk till he was almost 3 but can now get arond in his own fasion .

Ds is starting school this september shock
and we will be trying ms placemnt with suppot, he went to ms preschool as well

Alsohave 3 other dc of 15,12 and 6

Phoenix4725 Tue 28-Jul-09 07:47:49

forgot to mention ds is also on the small side 95 cm and 15 kg ,but he is a happy chap most of the time

Nyrrem Tue 28-Jul-09 13:43:59

Hi Annie,

Welcome to the board, it's great.

I have ds (4.7, social communication difficulties (AKA yet to be diagnosed Aspergers), hypermobility and severe hypermetropia. I also have dd 8m who I'm not sure about yet.

lou031205 Tue 28-Jul-09 14:14:58

Hi Annie, welcome. I have DD1, 3.7 who has cortical dysplasia - GDD, epilepsy. She goes to MS preschool with 1:1, and hopefully will start statementing process in the autumn.

sc13 Tue 28-Jul-09 16:07:26

Hello Annie and James (and twin)! You look like you're very much on the ball - there always so many angles to cover with kids with SN, aren't there. My DS (3.3) has ASD; we did music therapy for the first time today! He loved it, especially the drum kit smile.

marmoset Sat 01-Aug-09 21:30:01

Hello Annie - i have 3 dcs, including a 12yo with Down Syndrome. This board is great - everyone understands straight away what you have to say. smile

waitingforgodot Sat 01-Aug-09 22:17:29

Hi Annie-glad you found this board. I am fairly new too. I have one ds(3.3) who the paediatrician reckons has ASD. The people on this board have been the kindest, most supportive bunch ever.
Keep posting as there is always something here to chat to.

Lauree Sun 02-Aug-09 09:21:15

Hello Annie and James!
I've recently found this board. It's good to find others out there with similar hopes and fears - and everyone is so kind and ready to share information. Welcome smile Here's a bit about us...

I'm a single mum in my forties, live in east London, and work part-time. I used to have hobbies and interests, and I mean to get some again soon! wink I feel I can say that here because I know people will understand!
My DS is 5. He's a funny boy with a great sense of humour, who loves music. He has sotos syndrome, and some brain damage caused during a difficult birth which has resulted in global delay, hypotonia, a weak grip: he slurs his speech a bit so it's hard to understand him, and he's very big for his age (he wears age 8 clothes) He also has epilepsy, and we're still trying to get the dose right because the side effects are too much right now. He goes to MS school with a full time LSA. It seems to be working out well.

For us, it a bit like having a two year old who's going through all the terrible two's (STILL) but he's the size of an eight year old.

stringerbell Sun 02-Aug-09 12:03:21

Message withdrawn

changenameruk Sun 02-Aug-09 12:46:47

hi annie

welcome to the board. everyone is fab here. i am more a reader than a poster. I have dd who is 7 with CF, epilepsy, dyspraxia etc...

Woooozle100 Sun 02-Aug-09 20:50:39

Hi annie

My dd also had lazy eye, low muscle tone and is tiny (amongst other stuff) She is 4 and has rare chromo disorder, leukodystrophy and metabolic probs

Are you doing any patching for the eye?

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