Skip to main content
Skip to main navigation
Skip to talk navigation

Active discussions

Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Flip thread

Hide thread

My feed

Saved Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

Flip

Here are some suggested organisations that offer expert advice on special needs.

Here are some suggested organisations that offer expert advice on special needs.

SN children

Hi. I' new. Quick introduction (except it turned out to be quite long!)

20 replies

annie987 · 27/07/2009 21:19

Hi
I have been reading this board for a few months but have finally placuked up the courage to post.
My son James is 2 years and 2 months old and is 'special needs'.
He was born at 29 weeks weighing 1 lb 8oz due to poor blood flow to him. He is one of twins.
He has Global developmental delay - not yet walking, poor speech and understanding, delayed fine motor skills etc.
He receives physio for hypermobility and low muscle tone - he currently wears piedro boots with insoles but is being fitted for splints in August as his feet are rotatin so much the physio is worried they may 'collapse'.
He has a speech therapist who he sees and we are also being sent on a Makaton course to aid communication with him.
He is very small for his age - just hit 20lbs and 79cm. He has been referred to a geneticist to see if there is a reason why he he is so small and late developing. There is some question over Russell Silver Syndrome.
He see an Orthoptist as he has Browns syndrome (a posh name for a lazy eye!)
He has a portage worker who we see fortnightly and we are waiting to see the Ed PSych.
He starts Nursery in January when he will be 2 1/2. Its an assessment place to determine what help he will need when he starts school.
He has also had 2 bouts of surgery to correct a hypospadias!
I think that's it.
To all intents and purposes he is basically a 13 month old boy (who is actually 26 months old!)

OP posts:

Report

wrinklytum · 27/07/2009 21:54

Hello Annie,welocome to mn.I have 2 kids,1 nt and 1 little monkey with gdd due to immature brain development,she is gorgeous,though.

Hello to James

mummypig · 27/07/2009 21:54

Hello Annie, don't have any insight into your particular situation but welcome to the board.

wrinklytum · 27/07/2009 21:56

pS dd did not walk unaided until 3.She has very little language but is adept with pointing,screeching and screaming,lol.She is also learning signs

mum2fredandpudding · 27/07/2009 22:02

hi annie. welcome to the sn boards. as you already know a wonderful place to ask questions nad find useful tips. An even better place to find support in a world where it can be so hard to find other people in the same boat, to have people understand the fear and concern gripping our hearts.

is james' twin NT?

i have 2 boys the eldest of which is 2.9 and ASD and he is the love of my life (as is hos brother)

mysonben · 27/07/2009 22:13

Hi, welcome to MN, you'll find lots of support and advice here.

I have 3 kids, my ds2 who is 3.9 has mild asd, and i'm so glad to have this board to talk , vent, ask questions,...

siblingrivalry · 27/07/2009 22:17

Hi Annie -glad you found us
I have two dds -the oldest has Asperger's. I have found the support here to be invaluable;I'm sure you will, too.

RaggedRobin · 27/07/2009 22:17

Hi annie - sounds like you and james have a very busy schedule! this is such a helpful board. i'm sure you'll find it very supportive.

HelensMelons · 27/07/2009 22:24

Hi Annie

Welcome to the sn board - it's very helpful and supportive.

I have 3 DC's, DS1 (nt), DS2 (asd) and DD3 (nt).

Hello to your dc's!

monstermansmum · 27/07/2009 23:49

Hi Annie-my son is nearly 8 and has Angelman Syndrome=SLD, epilepsy, scoliosis, non verbal etc. He didnt walk till he was 3.5yrs but he's doing really well now. I also have 4 other children inc step-kids. Feel free to ask any questions, somebody on here will have an answer for you.

Phoenix4725 · 28/07/2009 07:46

hi Annie and welcome

I foundthis board and the people on it has been a fantasic support

Have ds who is 4 though is more like a 2-2,1/2 year old and has Global delay,hypermoblity ,low muscle tone and verbal and oral dyspraxia as well as problems understanding ,.He is non verbal still but uses makton to communicate all else he will screech and drag.Can fully recommend something special on cbeebies ,dvd or on bbc i player.

He to wears peidro boots and were due to have splints any time soon to as well he also has a lazy eye .Ds did not walk till he was almost 3 but can now get arond in his own fasion .

Ds is starting school this september
and we will be trying ms placemnt with suppot, he went to ms preschool as well

Alsohave 3 other dc of 15,12 and 6

Phoenix4725 · 28/07/2009 07:47

forgot to mention ds is also on the small side 95 cm and 15 kg ,but he is a happy chap most of the time

Nyrrem · 28/07/2009 13:43

Hi Annie,

Welcome to the board, it's great.

I have ds (4.7, social communication difficulties (AKA yet to be diagnosed Aspergers), hypermobility and severe hypermetropia. I also have dd 8m who I'm not sure about yet.

lou031205 · 28/07/2009 14:14

Hi Annie, welcome. I have DD1, 3.7 who has cortical dysplasia - GDD, epilepsy. She goes to MS preschool with 1:1, and hopefully will start statementing process in the autumn.

sc13 · 28/07/2009 16:07

Hello Annie and James (and twin)! You look like you're very much on the ball - there always so many angles to cover with kids with SN, aren't there. My DS (3.3) has ASD; we did music therapy for the first time today! He loved it, especially the drum kit .

marmoset · 01/08/2009 21:30

Hello Annie - i have 3 dcs, including a 12yo with Down Syndrome. This board is great - everyone understands straight away what you have to say.

waitingforgodot · 01/08/2009 22:17

Hi Annie-glad you found this board. I am fairly new too. I have one ds(3.3) who the paediatrician reckons has ASD. The people on this board have been the kindest, most supportive bunch ever.
Keep posting as there is always something here to chat to.

Lauree · 02/08/2009 09:21

Hello Annie and James!
I've recently found this board. It's good to find others out there with similar hopes and fears - and everyone is so kind and ready to share information. Welcome Here's a bit about us...

I'm a single mum in my forties, live in east London, and work part-time. I used to have hobbies and interests, and I mean to get some again soon! I feel I can say that here because I know people will understand!
My DS is 5. He's a funny boy with a great sense of humour, who loves music. He has sotos syndrome, and some brain damage caused during a difficult birth which has resulted in global delay, hypotonia, a weak grip: he slurs his speech a bit so it's hard to understand him, and he's very big for his age (he wears age 8 clothes) He also has epilepsy, and we're still trying to get the dose right because the side effects are too much right now. He goes to MS school with a full time LSA. It seems to be working out well.

For us, it a bit like having a two year old who's going through all the terrible two's (STILL) but he's the size of an eight year old.

stringerbell · 02/08/2009 12:03

This reply has been deleted

Message withdrawn

changenameruk · 02/08/2009 12:46

hi annie

welcome to the board. everyone is fab here. i am more a reader than a poster. I have dd who is 7 with CF, epilepsy, dyspraxia etc...

Woooozle100 · 02/08/2009 20:50

Hi annie

My dd also had lazy eye, low muscle tone and is tiny (amongst other stuff) She is 4 and has rare chromo disorder, leukodystrophy and metabolic probs

Are you doing any patching for the eye?

Flip

Please create an account

To comment on this thread you need to create a Mumsnet account.