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dd's last EEG shows lennox-gastaut syndrome

(97 Posts)
sarah293 Fri 24-Jul-09 13:41:59

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glitteryb6 Fri 24-Jul-09 13:57:06

bugger! sad one of the wee boys on SKIUK has LG, maybe his mum would be good to talk to?

glitteryb6 Fri 24-Jul-09 13:57:37

ah see you've just posted there too

FioFio Fri 24-Jul-09 13:58:48

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MumOfThreeMonkeys Fri 24-Jul-09 13:59:03

sorry riven sad
nothing useful to say to you but sorry

HairyMaclary Fri 24-Jul-09 14:08:35

Oh, I'm so sorry Riven. I know you have dreaded this and tried so hard to avert it.

Nyrrem Fri 24-Jul-09 14:11:37

Gutted for you

TotalChaos Fri 24-Jul-09 14:34:36

very sorry riven

siblingrivalry Fri 24-Jul-09 14:36:36

Oh, Riven, I'm so sorry.

Mitchell81 Fri 24-Jul-09 14:38:28

I am so sorry

waitingforgodot Fri 24-Jul-09 14:46:35

sorry to hear that Riven

Woooozle100 Fri 24-Jul-09 14:47:47

sorry riven

hippipotamiHasLost49lbs Fri 24-Jul-09 14:50:30

I am so sorry Riven sad

r3dh3d Fri 24-Jul-09 14:57:50

I'm so sorry Riv. I've typed 3 replies and binned them all - can't say the right thing at all. sad

sarah293 Fri 24-Jul-09 14:58:09

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Woooozle100 Fri 24-Jul-09 15:04:44

oh riven

dunno what to say - other than I've never met a child who didn't have some understand / connection with their parent

don't think you can expect anything. Just focus on yr gorgeous girl.

My dd is the same to me. Even though she clearly has lost some skills in some areas (not the same I know)

r3dh3d Fri 24-Jul-09 15:17:35

Hum. Well, DD1 doesn't often understand me, no. But that's not because she has SLD, it's because her particular SLD means her entire social processing centre is shot to bits and so she's a bit like a child with SLD plus ASD though it's organically quite different.

From what I can tell (I was in DD1's school on Weds for the leaver's assembly so got a snapshot of the whole school iyswim) a SLD in itself won't affect the child's character or essence in any way. There were some truly fabulous kids there and the cameraderie (and undirected testosterone, and ribbing and teenage angst! grin) wasn't in essence different from any other school.

sarah293 Fri 24-Jul-09 15:24:38

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lou031205 Fri 24-Jul-09 15:54:54

Riven, so sorry. I don't know if the learning disabilities children are born with are the same as a child developing LD after previously not have. There is a yahoo support group health.groups.yahoo.com/group/lennoxgastaut/

BriocheDoree Fri 24-Jul-09 16:53:53

So sorry, Riven.
Particularly on top of your other post.
Can't imagine how stressed you must be right now sad

Phoenix4725 Fri 24-Jul-09 19:35:28

so sorry Riven knew that was something you was worried about

Phoenix4725 Fri 24-Jul-09 19:50:42

ds has Ld Riven and he still recognises me sometimes he understands me other times he chooses not to , mind its male thing I swear

Butwhen you get to meet him hes a sunny, happy little boy

bullet123 Fri 24-Jul-09 19:52:15

Very sorry to read this Riven .

5inthebed Fri 24-Jul-09 20:26:23

So sorry Riven sad

Sidge Fri 24-Jul-09 20:31:25

Oh Riven that's so shit. I am so sorry. sad

Sending you an un-MN hug ((()))

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