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Anyone apply for mobility part of DLA when their child turned 5?

(15 Posts)
nikos Mon 20-Jul-09 15:57:19

Ds with ASD currently gets middle rate DLA and I'm wondering if I should apply for lower rate mobility when he turns 5. He is a runner and gets lost easily so needs constant supervision when out. Anyone any experience?

2shoes Mon 20-Jul-09 17:30:34

bump

fairydust Mon 20-Jul-09 17:58:06

i dont know the criteria for lower rate mobility but i thought to recieve the mobility part they had to have walking difficulties

Phoenix4725 Mon 20-Jul-09 18:10:58

hmm think theres few that get dla at high rate for dc due to the fact the asd impares their judgement meaning they are unsafe when out

sarah293 Mon 20-Jul-09 18:42:49

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juliaw Mon 20-Jul-09 20:17:33

sorry to jump on your thread but wondered for a while if you apply for mobility do you have to reapply for the care? Worried if I did apply that I might get a different decision on care (currently get high rate but think someone stingy would easily downgrade us); or can you just fill out the mobility sections?

nikos Mon 20-Jul-09 20:34:03

I believe you can get lower rate mobility for ASD children if they need constant supervision when out. Hence the reason why it can't be applied for until the child is 5 - they judge all children to need constant supervision until 5.
I too am a little bit nervous about applying in case they reassess DLA too - hence wondered if anyone else has applied.

coppertop Mon 20-Jul-09 20:37:45

I was a coward and waited until their DLA was due to be renewed anyway. Ds2 was 5 and ds1 was 7. Both were awarded lower rate mobility.

Widemouthfrog Mon 20-Jul-09 21:50:08

I had middle rate for ds, and applied for mobility at 5. he is ASD, and I was awarded low rate mobility - I emphasised that he runs away, and can refuse to walk and go floppy. I described in detail the planning needed to take him to a new place safely.

staryeyed Mon 20-Jul-09 21:52:58

You can get mobility element before 5 but you must be receiving higher rate care and have "severe mental impairment" or be "virtually unable to walk". We are going to tribunal with help of welfare right officernext month to get it for DS1whi is 4 hopefully.

www.nas.org.uk/nas/jsp/polopoly.jsp?d=2234

and

www.nas.org.uk/nas/jsp/polopoly.jsp?d=2235

sarah293 Tue 21-Jul-09 08:14:03

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daisy5678 Tue 21-Jul-09 20:53:58

J has autism and ADHD. Is VERY VERY mobile, and has no learning difficulties in the traditional sense but lives in his own bizarre universe (where he can fly and has special powers) and behaves in a totally unsafe-and-has-no-fear-or-sense-of-danger way.

He got middle rate care and low mobility at 5 with no hassle. He then (after quite a long appeal process and a not-too-painful Tribunal) was awarded high rate care and high rate mobility for 5 years. Your ds should meet criteria for low rate mobility if he has supervision needs in excess of a normal 5 year old when out and about. HRM is another, horribly complicated kettle of fish (love that expression) so I won't bore you with that if you're after LR!

misscutandstick Tue 21-Jul-09 21:42:33

we are currently applying for HRM for DS5. He is 3y/o and has GDD, autism, new-one-added-to-the-list-today dyspraxia.

The awarding decision maker awarded HRC a year ago and mentioned to our HV that when hes 3 to apply for HRM. Im not holding my breath TBH, but its worth a try.

Mentally he functions more like 12-18mths and has no sense of danger at all (what 12mth does???), and he is a runner.

we have now been waiting 10wks for decision - but i suspect will have to wait another 6wks as the name to speak to is our portage woman and shes off now for summer angry but hey ho....

incidentally, when we applied for the HRM, we didnt have to re-apply for care component, but apparently they 'look at it' anyway.

Phoenix4725 Wed 22-Jul-09 05:11:57

we got hr for ds at 3 but more to do with physical issues than his other i think, we to get hr care for him but think they relooked at whole package.Know its due for renewal when ds is5

nikos Wed 22-Jul-09 12:34:56

Thanks - think ds would qualify for lower rate mobility becauae of the ease with which we can lose him, but wasn't going to try for higher rate as don't think he will (or should) qualify for this.
My worry was they might reassess the whole package and we wouldn't get middle rate DLA, but should just phone them really. I've phoned the telephone people very open and helpful.

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