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Here are some suggested organisations that offer expert advice on SN.

I don't really give a toss who pays for it but arrrrggghhhhh

(12 Posts)
Woooozle100 Fri 17-Jul-09 10:08:33

anyone else fed up with constant passing of pots and tiny hairs splitting over where funding should come from?

this is like our groundhog day battle every time we need something - who is going to fund it - ss or lha

latest is a bed. Is it for a social or medical need? Obv need to sleep is pretty basic requirement and aye there are medical needs to consider in choice of bed.. but rather than just graciously going dutch instead its a prolonged cycle of assessment from each side

monstermansmum Fri 17-Jul-09 12:34:27

cany get beds where we are whether it is a medical or social need or not. They said "Bolton dont do beds!" Try a charity-Cauldwell Trust paid for ours-Bakare Tom Cot with extra high sides etc. Been brilliant-even if he doesnt sleep at least we dont have to be up all night with him.

PeachyTheRiverParrettHarlot Fri 17-Jul-09 12:48:52

MMMum we had the same with nappies,glad he's dry now. No nappies until 7 / 12 / etc


Pixie YANBU its silly. The asnwer of course is YOUnpiad for it when you / yur DP were working adn paying cuncil tax and income tax, you dont give a damn who writes the actual cheque

Woooozle100 Fri 17-Jul-09 12:49:58

bolton don't do beds - blardyell shock

picturing all yr pubic sector bods going home and sleeping on the floor. Or futons grin

Just applied to the Cauldwell Trust for her Conductive Ed funding. Ah well - will pysche meself up for another mammoth form and work down the list. Huuffffffff - bit tiresome innit?

Woooozle100 Fri 17-Jul-09 12:53:48

oh peachy the moving the nappy goalpost is a common one as well? (we're at the holy grail of 4 yo here - don't know anyone who's gotten them at 4 though)

It just sucks.

hamsterlover Fri 17-Jul-09 14:08:31

This charity provides funding for specialist beds and cots (amongst other things)www.newlifecharity.co.uk/

monstermansmum Fri 17-Jul-09 18:59:55

Pixie-the paed said "why cant he sleep on the floor on a mattress like other disabled children who escape-we can get extra locks put on the door"!!!!shockangry

Needless to say we didnt go down that route, would be ok if it was our decision but I wasnt happy that the paed actually said that instead of reccommending funding!

We get nappies at 4 but only 3 A DAY!!! Regardless of need or age. "Thats what DLA is for" Apparrently hmm

meltedmarsbars Fri 17-Jul-09 22:46:12

Monster - what does the paed think of the fire safety aspect of the locked door suggestion?

The nappies thing is awful - how can an incontinent 4 year old limit their peeing and pooing to a certain number of times a day? hmm we need 6 or 7 easily, and pampers are too small for a 3 or 4 year old! We have prescibed ones now.

How can DLA be for a product you cannot buy over the counter?

The system baffles me.

monstermansmum Fri 17-Jul-09 23:11:44

Out of interest....how many nappies do you all get for your incontinent dc's???

As I said, in Bolton we get 3 a day from age 4, including adults! I have had countless arguments with the local authority and it would be good to have some ammo!!!

They say that the nappies are not 'free' but they are a service that the LA provides, its not statutory therefore they can provide what they think is the minimum nec.hmm

DLA is supposed to be used to buy extra from the incontinence shop but they are expensive. DLA is magic money isnt it?-it covers everything....nappies, bedding, clothing, bibs, fuel, hospital expenses, sn toys, holidays etc etc.hmmwink

monstermansmum Fri 17-Jul-09 23:12:27

sorry for the hijack pixie!!

Phoenix4725 Sat 18-Jul-09 05:57:25

here its ment o be free nappiues at 4 ds is 4 next week andsuprise supris ei phones spealist hv to ask when we can get and shes like well theres a new incontinace nurse due start in augus you will be on he rlist to see hmm so by my reckoning that means October

anonandlikeit Sat 18-Jul-09 20:42:35

Here (suffolk coastal) its free nappies from the age of 4. The HV came out & completed a continance assessment, worked out how many we would need in 24 hrs & then put the request in to the contimamce service & then we received a huge delivery.

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