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Blue badge for high functioning autism?

11 replies

aannoonn · 23/06/2009 15:55

i have a child who is 8 and has adhd and hfa. a friend of mine has a blue badge for her child with a similar dx as my child. i wasn't aware that we would be entitled to one but she thinks we may be??

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busybeingmum · 23/06/2009 16:40

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HelensMelons · 23/06/2009 17:14

Yes, anon

We applied for a blue badge on the basis that he has no sense of danger whatsoever; he is impulsive and runs (everywhere), he puts himself and my other lot at risk if we have a meltdown.

We filled the form in and then the GP rang me about our application. I explained to her that, although, there weren't any mobility issues there were other issues (as mentioned) and she was very supportive and we got our blue badge!

Good luck.

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lou031205 · 23/06/2009 19:54

We were turned down for one, despite our consultant asking us to apply. Similar issues to HelensMelons. But in Hampshire Learning Difficulties or behavioural issues apparently don't qualify. I am about to appeal.

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daisy5678 · 23/06/2009 21:21

J also has HFA and ADHD and is academically bright blah blah, but violent, no sense of danger and a runner.

We got a Blue Badge when J was still only on Middle Rate Care and Low Mobility DLA, by getting the consultant to write a letter to the council.

We then got high rate mobility 18 months later.

The reason is because the autism makes it hard for him to walk safely and for him to behave safely etc.

It is possible but it was a long fight for the DLA - blue badge easyish.

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misscutandstick · 24/06/2009 07:44

I applied for a blue badge (nottinghamshire) for the same reasons DS5 (3.1y, GDD) is a runner and so unsafe its unreal! doctor is in full agreement with me, badge dept arent interested unless we get HRM.

what really gets my goat is that I have 5 children, 3 with SN (actually im lucky, i have one of each: ADHD, AUTISM, AS ) so guiding my children thru a car park is like fish herding! its truly terrifying some days! and yet because they all physically walk (and I AM thankful for that ) we cant have a blue badge . Why is it that i cant apply as a 'whole' rather than just for one person it seems really stupid.

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daisy5678 · 24/06/2009 17:58

Pick your most extreme one (sorry, but you know what I mean) and push for HRM - it is possible. It's not about being able to walk. J can walk. He's entitled to it because he has arrested development of the brain (autism) with severely challenging behaviour which results in severe defecits in intelligence (in the useful sense, ie. knowing what's safe) and social functioning.

Nothing nothing nothing to do with walking/ physical ability.

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alfiemama · 24/06/2009 18:21

We tried to apply for ds asd, but Dr advised wouldnt get it and didnt return our forms , so I emailed the blue bdge people, who were lovely and someone rang me for a chat. Once I mentioned that Alf cant walk far and no sense of danger, she said just get consultant to apply. Which we are in the process of doing, so fxxxxx we may get it.

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daisy5678 · 24/06/2009 19:30

We were initially told by Blue Badge people that only the GP could fill in the form. GP had never met J and so ticked the 'can walk fine' box. We happened to be seeing the consultant psych at CAMHS that day and mentioned it; she wrote a letter and all was sorted!

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PeachyTheRiverParrettHarlot · 24/06/2009 19:42

We don't get one despiete 2 asd kids, ds1 gets HR but ds2 doesn't (he wakes seven times a nigt but obviously I write that in invisible ink so they can't know)

We should ahev one, they both fit criteria and there's an obvious extra buggerance in having two of them when out, but that's DLA for you and I have given up and accepted I can only go to anywhere except community farm (fenced and familiar) with 2 of them if I have an extra adult

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PeachyTheRiverParrettHarlot · 24/06/2009 19:43
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Whenmumbecomescarer · 14/03/2019 16:27

Hello everyone,
This is my first post so be gentle with me if I make a mistake. My daughter is in years 24 but mentally a young child. She is awarded high rate for both components on PIP. We had to go for the swap over (DLA/PIP) assessment which was VERY traumatic, for us both if I’m honest. She wouldn’t even go in the building to start! Anyway, I digress, the nurse we had was so nice and really great with her when she finally got to see her. She was appalled that she had been put through the trauma of the assessment when it was obvious nothing was ever going to change and she said as much in her report.

The swap over from DLA to PIP over I thought all was well. The blue badge became automatic as she had high rate pip mobility. However it is now up for renewal and having read the small print, it states you are no longer automatically eligible for the blue badge with HR PIP. You now have to score at least 8 points on mobility, she doesn’t. Like a lot of you will know it isn’t about mobility, yes she can walk but can she walk safely then the answer is no, absolutely not. Social Services deem her the most vulnerable, scoring her the highest they could. She could never be out alone for her safety, she is always with me or one of my team of carers. To look at her you wouldn’t know she had any issues, she appears fine but that’s so far from the truth, appearances are deceptive. She has Mild Cerebral Palsy, Autism, Learning Difficulties, slight spastic on one side and numerous other issues.
Has anyone got any advice on how I proceed now in renewing her blue badge, it is such a valid part of her integration in to society.

Hope I haven’t gone on too much but I wanted to make sure you knew enough to try to help and offer me advice?

Thank you.

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