horrible start to the day, Ds1's MRI scan....

[SparklyGothKat]

well we got to the hospital at 8:30am for his 8:45 appointment, got told they were expecting us at 8am!! even though I had a letter with me saying 8:45am. anyway we go through and they go through the scan with us, Ds1 is saying he doesn't want it.. I then find out it will be done under a general and not sedation (as it has been done before) Ds1 then freaks out (he hates being put to sleep)

He was taken through to the beds where they lay him down and he starts screaming and shouting at me saying 'I said no, why are you doing this to me?' over and over, I tried to calm him down and the doctor gave him the GA, he then passed out and I burst into tears...

The scan got 1 hour which I spent driniking tea and on my phone.. he then came round, shaking and the first thing he said was 'I SAID NO!!'

|Just hope it was worth it and it shows what the problem is.....

[anonandlikeit]

Oh Sparkly, poor you, poor ds1.
What are they looking for, have they given you any idea?

[SparklyGothKat]

he has Cerebral palsy but they were looking at his brain and his spine, they think he has some nerve damage in his lower spine which is affecting his bowel control.

[TotalChaos]

sorry it was such a grueling day, v. bad that their communication with you was so poor.

[anonandlikeit]

Hopefully it will give you both some answers

[ilovesprouts]

im waiting for an mri scan too but dont know when that will be hope your ds ok

[SparklyGothKat]

it was horrible, making the doctors inject him with something which he didn't want.. he is 11 now and knows and been through far too much for his age.. I am hoping that we don't have to do it again, but I know with his conditions that that will not happen, if the scan shows that there is a nerve problem then its another operation, and I am not sure I can go through that again (he had multi-level leg surgery last year)

[feelingbetter]

Hopefully it will be worth it and you get some answers