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Here are some suggested organisations that offer expert advice on SN.

still needing some reassurance

(6 Posts)
jules39 Fri 06-May-05 18:42:59

Anyone else out there been through similar, trying to bump this up!

Jules

Blossomhill Fri 06-May-05 18:44:20

Why what's up Jules?

jules39 Tue 10-May-05 18:56:42

Thanks for your reply blossomhill. Posted the same post under 'needing some reassurance' a week ago, not had many replies, just wondered how I got the post more noticed.

Jules

jules39 Tue 10-May-05 19:08:29

Hello all, I have'nt posted on here for a while now, anyway just wondered if there was anyone who has been through a similar experience with their child and what the outcome was.

My dd is 4 and has global developmetal delay, speech and language problems, and has a lot of obsessive traits. She has recently suffered 3 seizures in the last 5 weeks we are now awaiting an eeg at GOSH at the end of the month. Two of these seizures were with no temperature so we're still unsure what is causing this.

Cannot help but feel really worried, as it just seems that dd is suffering one thing after another. She has been tested for a number of things in the past as to why she is around 18/2 yrs behind with her development, all proved negative. She does a lot of odd things like collecting and hoarding her toys, and always has to have more than one of everything, she finds it very difficult to interact with other children, and seems to find being in adult company more satisfying. SHe has a thing about buttons and zips, and any spot of dirt she has on her clothes sends her into havinga tantrum.

If there are any mums out there who have had or are going through a similar experience please drop me a line.

maddiemo Tue 10-May-05 19:28:41

My ds has not had exactly the same experience but we have been through the one thing after another experience.

He was born with some defects, suffered breathing problems during an operation. Diagnosed with asthma at 8 mths. Diagnosed with failure to thrive at 2. He then went though lots of tests and was diagnosed with autism. He recently had an emergency operation on his nose as he suffered a septal abscess and now has no nasal cartilage and is under ENT for possible sleep apnoea.

So although not the same I really do understand how you feel.

Hope your daughters tests at GOSH go well.

Is she at school or pre school?

jules39 Wed 11-May-05 15:20:53

Hi Maddiemo, i'm sorry to hear about your little one being so poorly.

My dd is due to start mainstream school this September hopefully with a statement.

I must be honest i'm anxious and curious about the appt atGt Ormond St at the end of the month, I suppose I want to know what's causing the fits, but I also am worried in case it's somthing else causing them.

Jules

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