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Here some suggested organisations that offer expert advice on SN.

Mumsnet pages on SN: What links/other websites and organisations should we recommend?

(45 Posts)
morningpaper Fri 15-May-09 17:22:01

I know it's been discussed before so I'm sure you've got lots of ideas about links that we can put up to signpost people to organisations that will be helpful in getting support.

In the toddler book we suggested these links, so we have these to build on:

BIBIC (www.bibic.org.uk)
Children's Social Services www.everychildmatters.gov.uk/socialcare/socialservices
Early Support (www.earlysupport.org.uk)
Face2Face Network
Homestart
I CAN
IPSEA
National Autistic Society
Parents’ Centre (www.parentscentre.gov.uk)
Portage
Steps
Sure Start

Perhaps if we could compile a list to start with, then we could think about the best way to present the information.

Cooooolerama!

TotalChaos Fri 15-May-09 17:26:20

www.hanen.org.uk (Hanen are a canadian organisation specialising in language delay, NHS SALT departments often run their courses for parents of kids with language delays)

cerebra (has a useful guide to filling in DLA forms for kids witn sn)

WetAugust Fri 15-May-09 17:28:21

YoungMinds

Phoenix4725 Fri 15-May-09 17:39:33

parent partnership

Peachy Fri 15-May-09 17:49:23

SOS!SEN are amazing, got ds3 his SNU place finally

I know the people with a child with cystic fibrosis find their society amazingly supportive, also the dows synbdrome equivalent.

If you have BIBIC you need braiwave and also the dyscovery centre as well; similarish and all good reps

Cerebra has the best DLA guide going on their website

Samaritans; I know its a bit noyt-just-SN but sometimes poeple just need someone to talk to when scared at 3am

SNAP has helped us lots )special needs education advice)

whizzkidz

Not a charity but useful- crelling harnesses

Phoenix4725 Fri 15-May-09 18:00:23

family fund

Phoenix4725 Fri 15-May-09 18:01:19

i found afasic more usefullthan i can as ds is non verbal

Phoenix4725 Fri 15-May-09 18:02:00

http://www.afasic.org.uk/

alfiemama Fri 15-May-09 18:05:13

www.learningdisabilities.org.uk/

www.dwp.gov.uk/publications/dwp/dmg/ dla decision makers guidebook, got volume 10 on drop down menu

www.dyspraxiafoundation.org.uk

marmoset Fri 15-May-09 18:57:51

Hi - for parents with children with Down Syndrome-

Down Syndrome Association www.down-syndrome.org.uk
Down Syndrome Association Scotland www.dsscotland.org.uk
Down Syndrome Education Trust www.downsed.org.uk

marmoset Fri 15-May-09 18:59:20

ANd more generally, for those interested in makaton signing - www.makaton.org

Hangingbellyofbabylon Fri 15-May-09 19:10:28

Mainly for those with cerebral palsy + other brain issues:

BDF Newlife for funding of equipment
Cerebra - without a doubt.
Hemihelp - useful stuff for Hemiplegia and Cerebral Palsy.
Conductive Education

PheasantPlucker Fri 15-May-09 19:12:36

Contact A Family

Agree with Cerebra, great organisation.

As a family we got a lot of info from ASBAH, Hemihelp, Epilepsy Action and The Daisy Garland for our dd's particular difficulties.

cherryc Fri 15-May-09 19:29:28

Heartline.org.uk

For families of children with heart conditions.

cktwo Fri 15-May-09 20:06:56

National Deaf Children's Society have a great website

monstermansmum Fri 15-May-09 21:19:01

www.angelmanuk.org For Angelman Syndrome.

milou2 Fri 15-May-09 21:40:40

www.he-special.org.uk (since SN can lead to home education and this is a space to discuss whether to go for it or not.)

Cocodrillo Fri 15-May-09 21:47:48

hemihelp www.hemihelp.org.uk for children with hemiplegia (a form of cerebral palsy).

used2bthin Fri 15-May-09 21:53:52

www.climb.co.uk for children living with inherited metabolic conditions. And/or the Child growth foundation.

used2bthin Fri 15-May-09 21:54:58

blush not that one, I'll find out the right one...

used2bthin Fri 15-May-09 21:55:37

www.climb.org.uk

reiver Fri 15-May-09 22:07:07

www.fledglings.org.uk

practical products and resources for children's special needs.

morningpaper Fri 29-May-09 09:18:24

a littel bump

Woooozle100 Fri 29-May-09 09:24:46

Unique - www.rarechromo.org

Ace support group for all rare chromosome disorders

Hassled Fri 29-May-09 09:34:46

I second the Dyspraxia Foundation site.

This teachernet page here has a useful guide for parents and carers, and the site also links to the DCFS SEN Code of Practice.

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