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Broken bones on top of everything else..

5 replies

DJAngel · 21/04/2009 22:15

Pretty crap couple of days. DD age 3 who has tuberous sclerosis ( epilepsy and global developmental delay )fell awkwardly and rolled on to her arm on the trampoline yesterday morning and then we had a crap day in A&E which resulted in a assumption that she has fractured her elbow. Two lots of x-rays which she hated and were a nightmare, with no sign of an obvious break and three different attempts to resolve a pulled elbow that in the end they agreed she didn't have. You can imagine the pain! She is still in so much pain and although she has a sling and that's made her more comfortable she isn't attempting to use the arm at all and if we attempt to move it she screams in pain. She's on full painkillers but I'm so worried it's going to be something that will be complicated and won't resolve.

We are back at he hospital tomorrow for the fracture clinic and so I hope we get some answers.

It's awful because it's her dominant left hand, and also she is very unstable and clearly uses her arms to help her balance so she's so wobbly.. Also I can't explain to her what is going on, she has some understanding and uses some single words but is clearly so frightened. It's made worse by the fact that I worry that the distress will bring on a seizure, also in the hospital everyone talks to her and expects her to understand and respond, and no-one understands what TS is.. And - she was supposed to start nursery today and we've worked so hard for today to be a success and everything was in place and she couldn't go ..

Most of all I hate seeing her in so much pain with everything else she has to cope with..

All that accompanied by that old chestnut guilt at not being able to prevent it from happening to her. She loves that bloody trampoline but it will be a long time before I let her go on it again and she won't understand why and that will distress her too..

Oh dear what a moan.. Sorry to go on but I know you'll all know what I'm on about...

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LadyFio · 22/04/2009 08:19

DJAngel, my daughter broken her leg when she was 2 and I was absolutely DEVASTATED. She had mod-sev global delay at the time and had only started walking a few months previous. I felt absolutely awful but she managed with the cast fine and she managed okay when it came off. Try not to feel bad about it, these things happen

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chuckeyegg · 22/04/2009 08:21

Just wanted to send you and DD a big hug. Hope you get all the answers you need today at the hospital.

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amber32002 · 22/04/2009 08:25

Oh goodness me - sending you a very large virtual cuppa...

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bunnyrabbit · 22/04/2009 08:46

Oh DJ. Don't feel guilty. If we wrapped them in cotton wool they'd never get anywhere.

DS fractured his arm at 3 and we didn't even know for 2 weeks (didn't tell us it still hurt)so we really are crap!!

Can you pretty up the sling a bit? Does she have a favourite character/animal/colour? maybe felts or stickers (sewn on?)

BT