glitteryboy will be getting his trike!!!

[glitteryb6]

woohoo just had a call from the family fund to say they'll give me all the money for ds's tomcat tiger trike. its £1555 so had to promise not to apply for another 2 years

[Hangingbellyofbabylon]

Congrats - that great news! We've just had dd's kitten trike delivered and it amazing.

[drlove8]

well done glitteryb6! glitteryboy will have mega-fun with his new bike! please post photos up? so we can share the fun

[Mitchell81]

Thats great news. Hope he enjoys it

[trace2]

fantastic news!!

[Frasersmum123]

Great news!

[anonandlikeit]

brilliant, I hope he enjoys it!

[glitteryb6]

Riven, do you know whats really bizarre, i applied to 5 or 6 charities between july and december when i had £800 to go towards it and had absolutely no luck.
xmas came and went as did the gas and leccy bill so when i applied to the family fund i had nothing to put towards it and they said yes no problem!
seems charities are more likely to help if you need more?

[2shoes]

really pleased and pleastly suprised as I didn't know they brought big things like this(still I will be happy with my grant for a holiday)

[glitteryb6]

yeah, the first time i applied about 2 years ago i got £500 towards an £800 supported seat for my mums house and £380 towards a holiday so thought they would just give me something towards the trike, i had asked for holiday money as the second choice and the guy apologised for not helping with that too!

[hereidrawtheline]

wow that is great! What is it? Can you post a link? I am really happy for you!

[2shoes]

they have always just helped us with one thing, maybe it depends on what you ask for, next year I will ask for 2 things, but will make sure the second is very sn iynwim.

[trace2]

ive just asked for garden play equipment,like a climbing frame ! how long is the wait at the moment?

[glitteryb6]

about 8 weeks i think trace?

[trace2]

oooh thanks last time was 13 weeks seamed to take ages! how is your ds now with feeding?

[glitteryb6]

this is it...www.tomcatspecialneeds.co.uk/products-tomcat-tiger.htm

they start at £695 but ds's is so expensive as he needs so many extra bits, they are also making a special adapter so i can use either the headrest off of ds chair with the headband on it or the one off his wheelchair, none of the other companys were prepared to do this so thats why we went for the Tomcat

[glitteryb6]

trace, feeding going ok, domperidone and ranitidine upped so not so much sickness now and he is up to 12.8kg!

surgeon said if they redo the fundo they want to do a pyloroplasty to releive the pressure on the fundo from the full stomach/dystonic spasms, but a possible side effect is dumping where the bowel empties too quickly, so i said id leave it just now as i can cope better with puke than poo, going back to see them in 3 months to see how it goes.

[trace2]

oh i would too at moment at least the meds are working!

the trike looks great

[hereidrawtheline]

wow that looks fantastic!!!

[glitteryb6]

yes, ds cannot sit and has rubbish head control.
wish i'd taken a picture of him in it now, it has loads of support and i'll be using his headrest with the headband on it

[bullet123]

Wonderful news about the trike .

[glitteryb6]

ive added a high backrest with laterals and waistcoat, footshoes, calipers, pommel, mitts, and the extra adaptor that will be specially made to accomodate whatever headrest i choose to use.

the backrest with laterals and velcro waistcoat is described by Tomcat as suitable for a rider with little or no spinal control who needs considerable extra support or who is subject to seizures.

to be fair he wont really be pedalling, his legs will be strapped in the calipers and i'll be pushing with the handle so he wont really have a choice, i'll have his little legs going ten to the dozen!