Riven, do you know whats really bizarre, i applied to 5 or 6 charities between july and december when i had £800 to go towards it and had absolutely no luck. xmas came and went as did the gas and leccy bill so when i applied to the family fund i had nothing to put towards it and they said yes no problem! seems charities are more likely to help if you need more?
yeah, the first time i applied about 2 years ago i got £500 towards an £800 supported seat for my mums house and £380 towards a holiday so thought they would just give me something towards the trike, i had asked for holiday money as the second choice and the guy apologised for not helping with that too!
they start at £695 but ds's is so expensive as he needs so many extra bits, they are also making a special adapter so i can use either the headrest off of ds chair with the headband on it or the one off his wheelchair, none of the other companys were prepared to do this so thats why we went for the Tomcat
trace, feeding going ok, domperidone and ranitidine upped so not so much sickness now and he is up to 12.8kg!
surgeon said if they redo the fundo they want to do a pyloroplasty to releive the pressure on the fundo from the full stomach/dystonic spasms, but a possible side effect is dumping where the bowel empties too quickly, so i said id leave it just now as i can cope better with puke than poo, going back to see them in 3 months to see how it goes.