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Riven are you there?

(7 Posts)
Nat1H Tue 24-Feb-09 19:52:12

Hello - we met at Charnock Richard service station ages ago! How are you?
Was wondering if you could help me.
We have seen the eye specialist today, and every time we go, he tells us that he doesn't think DS2 has 'classic' CP. DS2 has CP symptoms, which have been diagnosed as triplegia, epilepsy and various eye problems which all don't link up together. He is in close consultation with our neurologist who agrees with him. He is now going to refer us to the geneticists.
He brought something up today, and laboured on it rather a lot, as if he was trying to point us in the right direction - he knows we are dealing with a solicitor.
When DS2 was 8 weeks old (he was 5 weeks early, so adjusted age = 3 weeks) he was given a dose of rectal diazepam as a 'stupid' member of staff thought he was having a seizure. I distinctly remember a neurologist going beserk at this, and this has also stuck in the doctor's head that we saw today. Do you think that this could have caused the problems DS2 is now having? I know it's a huge ask, and I can't give you all the proper details, but I don't even know if there are any long term side effects of diazepam, espcially in a 3 week old baby. Any opinions would be gratefully receieved.
Nat.

feelingbetter Tue 24-Feb-09 20:25:13

May be a bit late for Riven now. Bump again in the morning.

Nat1H Tue 24-Feb-09 20:40:06

Thanks for that

Peachy Wed 25-Feb-09 12:14:20

I beleive Riven might be tied up for a few daysso if no fast answer, she will be back

sarah293 Wed 25-Feb-09 18:29:37

Message withdrawn

Nat1H Wed 25-Feb-09 21:50:28

Nothing has shown up on the MRI, apart from the very outer layer of the brain (sorry, can't remember the proper term) seems 'flattened' somehow. Even this is argued amongst our specialists.

Nat1H Wed 25-Feb-09 21:52:28

Sorry Riven, I haven't been on here for absolutely ages. I didn't realise your DD was in hospital - sorry for asking such trivial questions at this time. Hope she is better soon.
Nat.

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