Our local Forum for Autism and related behaviours have organised a seminar with this chappie at a local hotel on 16th June.
The blurb thay have sent through sounds pretty impressive and my chq is in the post for two tickets. I just wondered if anyone here has heard him speak before?
Also wondering if its something you might be interested in attending Jimjams?
Thats the one CT.....thanks for the link Mrs F....are you Ok??? Youve been mysteriously quite the past couple of days?????
Think i may just photocopy all the blurb and post it off to the Paed....or would that be interpretted as me being a forceful woman who is implying he knows nothing about ASD and should at least attend one seminar on ASD???????
JaysM....I've come to the conclusion that OUR PAED is actually the Long Lost Twin of YOUR PAED.... I decided today to NEVER bare my soul to her EVER again.... i'm starting my own thread 4 that moan!!
I'm so down at the moment...cannot get up ....feel like just not trying anymore...then i remember my boys...and know i cannot take the easy way out- i just wish i was feeling alive. Thanks for asking any way...... your thread title says it all......i just don't know why it all has to be so damn hard,.
it's just frustrating...I sit here on the P.C reading 'exact descriptions of my boys'....and i feel that if tehy get the supprt etc in school etc ...then surely i can get it for my boys too....i feel like i need to print off every single website dealing with asperger's (particularily the bits about boys like mine that 'appear' so able...)....and then i realise that i can print away for all i like...it's the getting the teachers/paed to read it that is the problem.
Mrs F, I think you're probably well ahead of the Expert Patient Programme. It was suggested to me for my ME some time back and I investigated it, spoke to the coordinator and she said I was so knowledgeable and in tune with my condition that I could probably run the course. My guess is that you're probably at the same place with your kids, but the difference is that with ME you learn how to manage yourself, but with ASD you need outside support and you're not getting it. It could be worth checking out EPP so that you've ticked it off your list, but I don't think they'll be able to do much to help you. Or perhaps the Paed meant that you could work for them?!
Incidentally, if you are depressed it's because of circumstances you're dealing with, not a clinical cause, so all the talk in the world wouldn't be much good. It's practical help you need and it's sad that you're not getting any.
thanks...i've just printed off the thread about "the sitting Service'...and am about to try and self refer....
my psychologist also announced she is leaving at the end of may....so i feel even more desparate to get something in action as i will definitely suffer if i have no where to go.
she is asking the psychologist that is seeing my boys at the mo, if between them they could get social services 'properly involved'...as even my psychologist (agreeing with u karen!!!) says that how i am coping (or not!) is the current cause of my difficulties- sure i have psychological issues too.....but she is keen to get ME respite in some form.....she also thinks my current idea to spend all my own DLA on childcare in holidays to be a poor choice- she says that she believes we should be getting this childcare paid for by social services....so i do feel at least that i have her fighting my cause.....and i see the boys' psychologist next friday...and am definitely telling her that the paed's only suggestion is to watch Super Nanny....this is the same paed that 2 years ago said that SHE felt like PIGGY IN THE MIDDLE...when i was trying to get leigh's aspergers recognised @ school...and in the end i moved the boys to a different school ....and got the dx.....but hey! even now his needs are not being met.
here i go again...there's just too many issues going on at once...my brain is off at tangents constantly!!!
Good luck with the Sitting Service, I think it would be a help for you. It sounds as though you're right at the end of your rope and needing some good Mrs F time instead of just being a (damned good) parent. We all need that, even if it's in short bursts and on a scale that most people wouldn't even consider to be personal time. People take it for granted that they can have a pee in private, for example!
Your psych sounds great and definitely on your side - just the sort of person you need in the current climate. Hope she can manage to pull some strings and get things moving for all of you.
Take care of yourself, and remember that YOU are the most important person in the world! xx